Each week my son, who is in first grade, brings home four new vocabulary words. Here is how new sight words are presented to my son who has cortical visual impairment (CVI) and is in Phase III CVI (Roman-Lantzy). Continue reading “CVI and teaching sight words”
When my son who has cortical visual impairment (CVI) was in preschool, it was important that he had visually accessible books. Most of the books in his classroom were filled with bright, multicolored, visually complex illustrations (complexity, Roman). Bright Baby makes a series of books that uses realistic photographic images and plain, solid color backgrounds. The books are inexpensive, easy to modify, and are one of the few items that CVI parents do not have to make themselves from scratch. Continue reading “CVI salient features books”
Going to birthday parties is a childhood rite of passage. When you have a kid with cortical visual impairment (CVI), invitations bring a mix of anticipation and dread. Anticipation because you want your child to be included in the first place – just like all the other kids. And dread because celebrations, events, gatherings, parties are a delicate balance for kids with CVI. Birthday parties can involve some of the most challenging characteristics of cortical visual impairment – a party in a new environment (novelty), lots of kids (complexity, difficulty with faces, complexity of array), and energetic little bodies (latency, movement). Add the sounds of a bunch of excited kids and you have one Complex sensory environment. (Roman-Lantzy) Birthdays are a perfect storm for a CVI meltdown. Continue reading “Birthday party”
ModMath is a math app that was created by parents, to help their child who has a learning disability and difficulty with handwriting. The free app “provides students a pencil free platform for doing basic arithmetic” equations including addition, subtraction, multiplication and division. Many of our kids with cortical visual impairment (CVI) also have difficulty with fine motor tasks like handwriting. ModMath could be a good option for students with CVI. A bonus would be the ability to color code math equations. The verdict is still out on that, but the question has been proposed.
“CVI parents are the busiest parents I know,” Christine Roman says this often. Now, CVI moms are busy working on CVI advocacy. Next up is a national phone call – initiated by a CVI mom – to begin a conversation on improving education and services for our kids with cortical visual impairment (CVI), the leading cause of visual impairment in children in the US.
There is a disservice when it comes to serving students with cortical visual impairment. Our children are denied equal access to appropriate assessments, interventions and services and they deserve better. Join us to begin a conversation about CVI advocacy and improving education and services for our kids.
CVI parents, we need your voices – please join us on the evening of Wednesday, March 14, 5:30 PDT / 8:30 EDT.
Special thanks to American Foundation for the Blind (AFB) for sponsoring this national conversation. Panelists, including CVI parents, will be announced soon.
Click for details CVI Advocacy National Teleconference Call
Wednesday Evening, March 14, 2018
5:30pm Pacific / 8:30pm Eastern
To join this free call: