Birthday party

Birthday party
Birthday party

Going to birthday parties is a childhood rite of passage. When you have a kid with cortical visual impairment (CVI), invitations bring a mix of anticipation and dread. Anticipation because you want your child to be included in the first place – just like all the other kids. And dread because celebrations, events, gatherings, parties are a delicate balance for kids with CVI. Birthday parties can involve some of the most challenging characteristics of cortical visual impairment – a party in a new environment (novelty), lots of kids (complexity, difficulty with faces, complexity of array), and energetic little bodies (latency, movement). Add the sounds of a bunch of excited kids and you have one Complex sensory environment. (Roman-Lantzy) Birthdays are a perfect storm for a CVI meltdown. Continue reading “Birthday party”

ModMath app for kids with writing issues

ModMath app for kids with writing issues
ModMath app for kids with writing issues

ModMath is a math app that was created by parents, to help their child who has a learning disability and difficulty with handwriting. The free app “provides students a pencil free platform for doing basic arithmetic” equations including addition, subtraction, multiplication and division. Many of our kids with cortical visual impairment (CVI) also have difficulty with fine motor tasks like handwriting. ModMath could be a good option for students with CVI. A bonus would be the ability to color code math equations. The verdict is still out on that, but the question has been proposed.

Husband-and-Wife Team Create Free Math App for Kids With Writing Issues

National CVI Advocacy Call 3/14

A call for CVI advocacy“CVI parents are the busiest parents I know,” Christine Roman says this often. Now, CVI moms are busy working on CVI advocacy. Next up is a national phone call – initiated by a CVI mom – to begin a conversation on improving education and services for our kids with cortical visual impairment (CVI), the leading cause of visual impairment in children in the US.

There is a disservice when it comes to serving students with cortical visual impairment. Our children are denied equal access to appropriate assessments, interventions and services and they deserve better. Join us to begin a conversation about CVI advocacy and improving education and services for our kids.

CVI parents, we need your voices – please join us on the evening of Wednesday, March 14, 5:30 PDT / 8:30 EDT.

Special thanks to American Foundation for the Blind (AFB) for sponsoring this national conversation. Panelists, including CVI parents, will be announced soon.

Click for details CVI Advocacy National Teleconference Call

Wednesday Evening, March 14, 2018
5:30pm Pacific / 8:30pm Eastern

To join this free call:
Dial: 1-866-939-3921
Code: 46438061

 

CVI-TVI Survey

A group of teachers of the visually impaired (TVI) have created a survey, link below, to find out how colleagues learn about cortical visual impairment (CVI). If you are a TVI, please complete the survey and share with your networks.

We are fellow Teachers of the Visually Impaired who are working with collaborators in a study group to investigate Cortical/Cerebral Vision Impairment (CVI). We are interested in learning more about how our colleagues across the US are gaining knowledge about CVI and how comfortable they feel about addressing this visual condition.

Matt Tietjen and Peg Palmer are TVIs working for BESB (Bureau of Education and Services for the Blind) in Connecticut.

Ellen Mazel is the CVI Program Manager at the Perkins School for the Blind in Watertown, Massachusetts and author of the blog “CVI Teacher.”

We guarantee that we will not use or share any of your personal information, your job or your personal circumstances. All responses will be completely anonymous.

Thanks for your help on this. We really appreciate the time you will take to fill out the following questions.

CVI-TVI Survey

Start Seeing CVI at NIH

Thank you to CVI mom Rachel for sharing your photo and wearing your t-shirt and raising awareness of cortical visual impairment (CVI). Every time you wear your t-shirt, or tell someone “My child has cortical visual impairment” or explain CVI to the 1,000th person who says “I have never heard of that,” you help to raise awareness of CVI.

From Rachel:

image1“At our yearly visit to the National Institutes of Health (NIH). This time they heard all about cortical visual impairment (CVI)—the leading cause of visual impairment in children in the U.S. The medical and educational fields have been slow to respond to kids with cortical visual impairment and CVI moms from across the country are joining together to change this. Here’s to the year of being a CVI tiger mom.”

Rachel shared that this was Henry’s fourth annual visit to NIH. After she provided Henry’s CVI Range Assessment report, the doctors referred to CVI as “central visual impairment” in the discussion that followed.

Share your Start Seeing CVI t-shirt photos on our Facebook page or email your photo and story to StartSeeingCVI@gmail.com.