Blog

Hard things

56949203_1274585616029042_2413379197780099072_oIt is hard to be the constant bearer of hard things. Hard to tell him about yet another appointment. Hard to tell him about another assessment. Hard to tell him about a new diagnosis. Hard to tell him about, perhaps, another intervention. Hard to tell him it’s an early pick up day, because a change in routine is hard. You do not look for more things, but you follow up. You do all you can now, in the hope of making life easier for him down the road. Nobody said parenting a child with cortical visual impairment (CVI) is easy. Nobody said it today. Continue reading “Hard things”

I’d know you anywhere

IMG_4722“Mommy, if you can’t find me, look for my orange shirt!” When we go running.

“I knew it was you because of your blue bag..” At the grocery store.

It is no coincidence that most of our things are brightly colored: shirts, jackets, bags, hat, bike…the car. Wherever we go we talk about how to find familiar people and how wearing a bright solid color sometimes helps my son who has cortical visual impairment (CVI), recognize or at least find me, his mom. Continue reading “I’d know you anywhere”