What to include in an IEP for a student who has CVI

What to include in an IEP for a student who has CVI
What to include in an IEP for a student who has CVI
With the help of TVI Matt Tietjen*, we have compiled a list of considerations when writing an Individualized Education Program (IEP) for a student who has cortical visual impairment (CVI). IEPs look different from state to state, but contain the same information. If you are a parent or a provider who works with a child with CVI, no matter where you live, here are some ideas to think about. It should be noted that our source for all discussion of CVI, the phases, the ten characteristics, accommodations and modifications is Cortical Visual Impairment: An Approach to Assessment and Intervention (2007, AFB Press) by Christine Roman-Lantzy. Continue reading “What to include in an IEP for a student who has CVI”

‘Why We Miss Objects That Are Right in Front of Us’ NYT article

Have you ever wondered ‘Why We Miss Objects That Are Right in Front of Us’? Insightful New York Times article on how expectations affect our visual perception. It is hard not to think of the implications for a child who has cortical visual impairment. The simulation is almost like a CVI Complexity Sequence card for those who do not live with CVI. And it brings to mind the words of Christine Roman-Lantzy: “For a child with CVI, seeing is easier when they know what to look for.” Continue reading “‘Why We Miss Objects That Are Right in Front of Us’ NYT article”

glassybaby and PCVI Society

glassybabyglassybaby is a nonprofit here in Seattle that creates handcrafted blown glass votives. Ten percent of every glassybaby is donated to the white light fund to help people, animals, and the planet heal. Last June, I nominated the Pediatric Cortical Visual Impairment Society for a glassybaby babygrant, and PCVI was awarded $6,000. If you are a parent, or work with a child who has cortical visual impairment (CVI) you know there is a critical need for awareness, education, and knowledgeable, qualified providers, from diagnosis all the way through the school years. PCVI Society is the only organization devoted solely to children who have CVI. Continue reading “glassybaby and PCVI Society”

How your child can help my child who has CVI

How your child can help my child who has CVI
How your child can help my child who has CVI

Waiting outside the classroom door for our kids to be dismissed, another mom smiled to me and said, “Let me know if there is anything Ben can do to help Jasper.” This mom was not yet familiar, and all at once a stunned gratitude welled up inside me. This other mom obviously had some awareness of Jasper’s cortical visual impairment (CVI). Continue reading “How your child can help my child who has CVI”