How do you greet a child with CVI?

How do you greet a child with CVI?
How do you greet a child with CVI?

We know that one of the ten characteristics of cortical visual impairment (CVI) is difficulty with faces, a component of Complexity (Roman-Lantzy). Knowing this, we should take some time to consider how we greet and interact with a child with CVI, remembering he is not likely to recognize you. This is essential for school teams, especially at the beginning of the school year. With a swirl of new peers, teachers, and classes, how we greet kids with CVI is so important. Continue reading “How do you greet a child with CVI?”

“Brave As Can Be: A Book of Courage”

"Brave As Can Be: A Book of Courage"
“Brave As Can Be: A Book of Courage”

Children with cortical visual impairment (CVI) are inherently sensory kids. At least mine is, everywhere, all the time. Because of brain differences, sensory processing is different. In addition to vision, this means hearing, smells, taste, touch are different too. These differences are a part of nearly everything we do, every single day. And it is addressed in many ways. Continue reading ““Brave As Can Be: A Book of Courage””

Text Project, a tool for getting started with salient features

The Text Project, Animals of All Shapes and Sizes
The Text Project, Animals of All Shapes and Sizes

Salient features and comparative language are critical strategies for children who have cortical visual impairment (CVI) (Thank you, Dr Roman-Lantzy). For my young son who has CVI, I always tell educators and new team members, These strategies – salient features and comparative language – are how my son learns to make sense of what he is looking at. These strategies are how he learns to make visual sense of the world. Figuring out salient features is harder than you think. The website, Text Project, Word Pictures can be a good place to start. Thanks to Judy Endicott for sharing  this resource. Continue reading “Text Project, a tool for getting started with salient features”

September is CVI Awareness Month

September is CVI Awareness Month
September is CVI Awareness Month

September is the first official CVI Awareness Month. Cortical visual impairment (CVI) has been the leading cause of visual impairment in children in the U.S. since the 1990s. CVI is the public health crisis that you haven’t heard of. For parents of children with cortical visual impairment, every day – every medical appointment, every school meeting, every therapy appointment, every inquiry from a well meaning, random stranger – is about CVI Awareness. Continue reading “September is CVI Awareness Month”

Back to school with Phase III CVI

Back to school: Phase III CVI
Back to school with Phase III CVI

Back to school means, once again, thinking about how to explain cortical visual impairment (CVI) to educators who are new to your child’s educational team. When your child is in Phase III CVI (Roman-Lantzy) this means starting with the basics  – the CVI ten characteristics, the three Phases and their goals, and the CVI guiding principles – then making the light speed jump to Phase III CVI and why it is different. Continue reading “Back to school with Phase III CVI”