Category: christine roman

christine roman, Considerations for CVI and Social Inclusion, cortical visual impairment, CVI, education, facial recognition, friends, social skills

“Considerations for CVI and Social Inclusion” by Christine Roman (webinar)

"Considerations for CVI and Social Inclusion"
“Considerations for CVI and Social Inclusion”

When it comes to explaining cortical visual impairment (CVI), nobody does it better than Christine Roman-Lantzy. She could be described thus: She literally wrote the book on cortical visual impairment. Or you could say, “books.” In Perkins’ series “CVI for the TVI and other professionals” Dr Roman talks at length about the impact of CVI on the social development and social inclusion of children with CVI. You can find the link to Considerations for CVI and Social Inclusion, parts I and II, below. Continue reading ““Considerations for CVI and Social Inclusion” by Christine Roman (webinar)” →

Back to school with Phase III CVI, christine roman, cortical visual impairment, education, Phase III CVI

Back to school with Phase III CVI

Back to school: Phase III CVI
Back to school with Phase III CVI

Back to school means, once again, thinking about how to explain cortical visual impairment (CVI) to educators who are new to your child’s educational team. When your child is in Phase III CVI (Roman-Lantzy) this means starting with the basics  – the CVI ten characteristics, the three Phases and their goals, and the CVI guiding principles – then making the light speed jump to Phase III CVI and why it is different. Continue reading “Back to school with Phase III CVI” →

christine roman, CVI, cvi diagnosis, CVI Parents have three problems, parents, Phase III CVI

CVI Parents have three problems

CVI Parents have three problems
CVI Parents have three problems, photo by Patricia Harrington Simanek

My son was diagnosed with cortical visual impairment (CVI) as a newborn in 2011, before he came home from the children’s hospital neonatal intensive care unit. Like many kids who have CVI, he had a stroke. Or more specifically, hypoxic ischemic encephalopathy, HIE. His birth experience meant absorbing the diagnoses of infant stroke and CVI, as well as the great unknown that goes along with that, because CVI is not a stand alone diagnosis. The doctors, neurologists, called it cortical blindness. This was a day or two after hearing the heart breaking words infant stroke for the first time, a phrase that is not comprehensible in the moment. Cortical blindness, the neurologist said. Because his impairment involves the brain, and not the eye itself, there is nothing you can do. Instead the doctor should have said, Because his visual impairment involves the brain – there is so much you can do. This should be the message to all parents whose child receives a diagnosis of CVI. Continue reading “CVI Parents have three problems” →