Back to school with Phase III CVI

Back to school: Phase III CVI
Back to school with Phase III CVI

Back to school means, once again, thinking about how to explain cortical visual impairment (CVI) to educators who are new to your child’s educational team. When your child is in Phase III CVI (Roman-Lantzy) this means starting with the basics  – the CVI ten characteristics, the three Phases and their goals, and the CVI guiding principles – then making the light speed jump to Phase III CVI and why it is different. Continue reading “Back to school with Phase III CVI”

CVI Parents have three problems

CVI Parents have three problems
CVI Parents have three problems, photo by Patricia Harrington Simanek

My son was diagnosed with cortical visual impairment (CVI) as a newborn in 2011, before he came home from the children’s hospital neonatal intensive care unit. Like many kids who have CVI, he had a stroke. Or more specifically, hypoxic ischemic encephalopathy, HIE. His birth experience meant absorbing the diagnoses of infant stroke and CVI, as well as the great unknown that goes along with that, because CVI is not a stand alone diagnosis. The doctors, neurologists, called it cortical blindness. This was a day or two after hearing the heart breaking words infant stroke for the first time, a phrase that is not comprehensible in the moment. Cortical blindness, the neurologist said. Because his impairment involves the brain, and not the eye itself, there is nothing you can do. Instead the doctor should have said, Because his visual impairment involves the brain – there is so much you can do. This should be the message to all parents whose child receives a diagnosis of CVI. Continue reading “CVI Parents have three problems”