How do you greet a child with CVI?

How do you greet a child with CVI?
How do you greet a child with CVI?

We know that one of the ten characteristics of cortical visual impairment (CVI) is difficulty with faces, a component of Complexity (Roman-Lantzy). Knowing this, we should take some time to consider how we greet and interact with a child with CVI, remembering he is not likely to recognize you. This is essential for school teams, especially at the beginning of the school year. With a swirl of new peers, teachers, and classes, how we greet kids with CVI is so important. Continue reading “How do you greet a child with CVI?”

“Brave As Can Be: A Book of Courage”

"Brave As Can Be: A Book of Courage"
“Brave As Can Be: A Book of Courage”

Children with cortical visual impairment (CVI) are inherently sensory kids. At least mine is, everywhere, all the time. Because of brain differences, sensory processing is different. In addition to vision, this means hearing, smells, taste, touch are different too. These differences are a part of nearly everything we do, every single day. And it is addressed in many ways. Continue reading ““Brave As Can Be: A Book of Courage””

Novelty is a Great Big Deal (moving with your child who has CVI)

IMG_5811Moving is hard. Yesterday was about learning what a Great Big Deal the CVI characteristic of novelty still is for my son who has cortical visual impairment (CVI). After driving across the country, itself an exercise in novelty, among many other things, our belongings arrived in a small portion of a  vast shipping container. Prior to its arrival, we talked about having our “stuff” again. For several days, we occupied our new home with limited possessions and no furniture. It was the perfect low complexity environment for a child in Phase III CVI to learn about and explore a new living space. Continue reading “Novelty is a Great Big Deal (moving with your child who has CVI)”

Speaking of CVI, behavior and sensory regulation

Speaking of CVI, behavior and sensory regulation
Speaking of CVI, behavior and sensory regulation

Below is a conversation around the topic of behaviors, coping mechanisms, and sensory regulation. This was an exchange with our occupational therapist (OT) that helped deepen my understanding of my son, who has cortical visual impairment (CVI). Other parents might find this conversation useful too. Our kids with CVI have inherent sensory processing differences, and as a parent, it can be difficult to discriminate the CVI from the sensory processing. Continue reading “Speaking of CVI, behavior and sensory regulation”

New research on aquatic therapy and the brain

New research on aquatic therapy and the brain
New research on aquatic therapy and the brain

This information on water and the brain is too good not to share. Most families of children who have cortical visual impairment (CVI) seem to report that their child “loves water.” This research, shared by our aquatic occupational therapist (OT) tells us why. The information comes from the International Conference for Evidence Based Aquatic Therapy (ICEBAT), recently held in Las Vegas, Nevada. Continue reading “New research on aquatic therapy and the brain”