Along the way of raising a child with a disability, there are moments when life seems to somehow come full circle. That’s what happened one day while reading a favorite book to my son with CVI. Continue reading ““Dandelion””
Category: CVI and faces
We know that one of the ten characteristics of cortical visual impairment (CVI) is difficulty with faces, a component of Complexity (Roman-Lantzy). Knowing this, we should take some time to consider how we greet and interact with a child with CVI, remembering he is not likely to recognize you. This is essential for school teams, especially at the beginning of the school year. With a swirl of new peers, teachers, and classes, how we greet kids with CVI is so important. Continue reading “How do you greet a child with CVI?”
Waiting outside the classroom door for our kids to be dismissed, another mom smiled to me and said, “Let me know if there is anything Ben can do to help Jasper.” This mom was not yet familiar, and all at once a stunned gratitude welled up inside me. This other mom obviously had some awareness of Jasper’s cortical visual impairment (CVI). Continue reading “How your child can help my child who has CVI”
The face your child makes when he cannot recognize you. I am there, maybe twenty feet in front of him, calling his name. The balmy therapy pool is not busy but the indoor acoustics of water and splashing and concrete interfere with the sensory processing necessary for locating mommy by voice. Cortical visual impairment interferes with sorting out and distinguishing the visual information of mommy, and the background grid of cubbies stuffed with tote bags, shoes and brightly colored towels. Standing almost directly in front of him, my son moves his head to the left, shifting me into his right, or preferred visual field, unsure of whether he hears his mother’s voice, and unsure where to find me in that space. Continue reading “‘So hard, this CVI’”
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