Advocacy and awareness of cortical visual impairment (CVI), the leading cause of visual impairment in children
* Guest blog post by Judy Endicott
When helping my grandson, River, who is almost nine, I know it is critical to use his CVI Range score (Roman-Lantzy), late Phase II, and information about his CVI characteristics as my guide to modifying his literacy materials. I always remind myself that what I can see and understand is different from what River “sees” and understands. Continue reading “CVI literacy, adapting books and text”
“Literacy begins when they look.” These were the words with which Christine Roman-Lantzy began her pre-conference session last fall at Northeast AER in Vermont. These words are important because parents of children who have cortical visual impairment (CVI) need to know that when we talk about literacy, we are not only talking about kids who are in Phase III CVI (Roman). When we talk about CVI literacy, we are talking about all kids who have cortical visual impairment. Continue reading ““Literacy begins when they look””
When it comes to looking at books with my son who has cortical visual impairment (CVI), there is a specific approach. He is in Phase III CVI (Roman-Lantzy) and there are some books that we buy off the shelf, and look at unmodified. As always, when it comes to choosing books, the goal is to feed his interest in literacy by choosing subjects that will be meaningful and motivating. Recently we picked up This is How We Do It: One Day in the Lives of Seven Kids from Around the World, by Matt Lamothe. My son is incredibly social and highly interested in people and other kids, my suspicion was that he would like the book. Since buying it several weeks ago, Jasper has read it every night at bedtime. When he reads the book to me in the dim evening light, I can tell that he has the book memorized. Continue reading “What do you see? How do you know?”
* Guest blog post by Judy Endicott
“Intervention must be driven by intention, not by materials.” – Christine Roman, 2018
Think about your own adult reading behaviors. Think about the range of choices of materials you have to choose from. Sometimes you pick materials based on length, sometimes on size of text, amount of pictures, subject and a range of other factors. You pick and choose, driven by goals and tempered by your energy and motivation. Continue reading ““Intervention must be driven by intention, not by materials””
Guest blog post by Peggy Palmer, TVI*
This week I arrived at a school just as Justine, a beautiful little four year old girl, was getting off her bus. Justine was recently diagnosed with cortical visual impairment (CVI) and is in Phase III on the CVI Range (Roman-Lantzy). She has some gross motor challenges and is verbal but with limited expressive language. Continue reading “CVI literacy when we least expect it”
