“Happy Halloween!”

On Halloween, children of all abilities go trick or treating.

The child who comes to your door but avoids eye contact may have difficulty looking at faces (complexity).

The child who is upset in a crowd may have difficulty with complex sensory environments and sensory integration.

The child who takes f o r e v e r to pick out a single piece of candy may have difficulty with overwhelming complexity.

The child who wears the same costume three years in a row may have difficulty with novelty.

The child who excitedly tells everybody “Happy Halloween!” beginning loooong before October 31st, may be practicing his script. Continue reading ““Happy Halloween!””

Star Wars and incidental learning

Star Wars and incidental learning
Star Wars and incidental learning

The last day of school before holiday break was pajama day. Pajamas can be hard for my son who has cortical visual impairment (CVI), especially the idea of wearing them during the day when it is not routine. When we talked about it, I made sure to suggest his favorite, Batman pajamas, to make it meaningful and help motivate him to participate in the social experience of wearing pajamas with his friends at school. “Do you want to wear stripey pajamas – or Batman?!?” “Batmaaan!!” he said throatily, excited. Continue reading “Star Wars and incidental learning”

CVI for first graders

CVI for first graders
CVI for first graders

When it comes to talking about cortical visual impairment (CVI) in the school setting, the topic of social skills is always a focus. Because as parents, the thing we want most for our kids with CVI is for them to make friends. We want our child to be accepted and understood. Whether talking to teachers or therapists or others who are hearing “CVI” for the first time, social skills are at the top of the list. Continue reading “CVI for first graders”

Yes, you need to understand something about CVI if you work with my child

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Yes, you need to understand something about CVI if you work with my child

Social skills play groups are hard to come by. And when your child has cortical visual impairment (CVI), it is even harder. For some reason, CVI does not easily translate when it comes to speech and communication providers. Surely there are exceptions, but that has been our experience. So, among other things, the last month has been about deciding whether a play group is a good fit. Finding the right fit has been like trying to fit a square peg in a round hole. Continue reading “Yes, you need to understand something about CVI if you work with my child”

“Thank you for making me cry at an IEP meeting”

Stay goldThese were the words of my son’s kindergarten teacher on our last field trip of the year. Earlier that week we had yet another IEP meeting, to hash out his vision goals, at my insistence. Partway through the meeting, it seemed appropriate to stop and acknowledge the final stretch of the school year, and my son’s progress at the end of kindergarten. Continue reading ““Thank you for making me cry at an IEP meeting””