When you live with somebody who has cortical/cerebral visual impairment, CVI, you think you know. Especially when you’ve known them from birth, when you’ve devoted your life to caring and learning about that person. Sounds are hard, I get it. We’re going someplace new, we’ll talk a lot about it, compare it to a familiar place, prelearn a map whenever possible, I get it. He looks at faces but faces are hard. He cannot recognize faces, he cannot recognize me. By now I’ve seen him not recognize familiar friends, people, teachers, many many times. You know this person, you know CVI, and its impact still catches you off guard, even after ten years.Continue reading “Faces are hard”
Along the way of raising a child with a disability, there are moments when life seems to somehow come full circle. That’s what happened one day while reading a favorite book to my son with CVI. Continue reading ““Dandelion””
“Mommy, if you can’t find me, look for my orange shirt!” When we go running.
“I knew it was you because of your blue bag..” At the grocery store.
It is no coincidence that most things in our lives are brightly colored: shirts, jackets, bags, hat, bike…the car. Everywhere we go, we talk about how to find familiar people and how wearing a bright solid color sometimes helps my son who has cortical visual impairment (CVI), recognize or at least find me, his mom. Continue reading “I’d know you anywhere”
Back to school for students with cortical visual impairment (CVI) means right back to navigating what can seem like brutal school hallways, sometimes even when they are devoid of students. Already this school year is a reminder of the difficulty of navigating hallways for a student in Phase III CVI. Continue reading “CVI in the hallways”
What to wear to go running at the track with my son who has cortical visual impairment (CVI)? With school out, the track would be empty so I am less thoughtful about the question of what to wear. Grey shorts and a grey tank top, my favorite top for keeping cool on a warm, humid day. We were good to go. Continue reading ““Where ARE you?””