Trick or treating with CVI

Trick or treating with CVI
Trick or treating with CVI

“Mommy, I can’t wear my glasses trick or treating because my mask goes over my face.” Until then it had not occurred to me that his head to toe Batman costume meant that friends would not likely recognize him at the first trick or treat in our new town. ┬áThe more strict school security meant no access to classrooms, no access to kids and parents at his new school. The hope was that Halloween would mean bumping into some new school friends, meeting families. Having a child with cortical visual impairment (CVI) who cannot recognize faces, makes it extra hard to recognize friends on Halloween. Continue reading “Trick or treating with CVI”

“Brave As Can Be: A Book of Courage”

"Brave As Can Be: A Book of Courage"
“Brave As Can Be: A Book of Courage”

Children with cortical visual impairment (CVI) are inherently sensory kids. At least mine is, everywhere, all the time. Because of brain differences, sensory processing is different. In addition to vision, this means hearing, smells, taste, touch are different too. These differences are a part of nearly everything we do, every single day. And it is addressed in many ways. Continue reading ““Brave As Can Be: A Book of Courage””

Recognizing friends is hard

Recognizing friends is hard
Recognizing friends is hard

After a long dry spell this school year, today was birthday party number two. This one was held at our local children’s museum. It would be the opposite environment of the previous calm, low key birthday, at home, with only five boys, from last weekend. To prepare we talked about how many kids would be there, likely more than five. A few familiar kids were invited so we focused on them. We talked about the complexity and noise and unpredictability of the surrounding museum with all of its activity and sounds and visitors. The museum was not a favorite and we rarely visited, so in addition to the overarching complexity, we added novelty (Roman). For my son who has cortical visual impairment (CVI), these are some of the most difficult CVI characteristics. Continue reading “Recognizing friends is hard”