“Cortical Visual Impairment: Advanced Principles”

Cortical Visual Impairment: An Approach to Assessment and Intervention
Cortical Visual Impairment: An Approach to Assessment and Intervention

In 2012, reading Cortical Visual Impairment: An Approach to Assessment and Intervention for the first time, was not about reading about a complex neurological condition. As the parent of a child with cortical visual impairment (CVI), reading that book, was reading about my son. It was somebody describing my child to me. Everything that he did, all of his behaviors, came into focus and made sense. Ever since, I have continued to learn as much as possible about my son’s cortical visual impairment. Continue reading ““Cortical Visual Impairment: Advanced Principles””

This is how we live.

CVI: This is how we live.
CVI: This is how we live.

When you are raising a child with cortical visual impairment (CVI), life looks different. It not only looks different for your child, it looks different for parents. CVI accommodations do not end on Friday afternoon when the school bell rings. For CVI families, accommodations happen all the time, everywhere, all day long, all the way up to and including bedtime. The accommodation follows the child with CVI…everywhere. Even on the weekend. Continue reading “This is how we live.”

New Year: Moving mountains

New Year: Moving mountains
New Year: Moving mountains

Leaving the Pacific Northwest and Seattle, the place that was home for twenty five years – twenty five years – does not feel like failure. Instead it feels like doing the right thing for my child. It feels like exhaling for the first time in nearly eight years, since my son’s diagnosis of cortical visual impairment (CVI). Continue reading “New Year: Moving mountains”

CVI Holiday gift list (sorry, no pom poms)

It’s not too late for the Start Seeing CVI holiday gift list. You won’t find red pom poms here because children with cortical visual impairment (CVI) like more than just pom poms (and besides, you already know where to buy pom poms and bright flashy toys). What follows are gift ideas from busy CVI moms (especially at this time of the year). Many thanks for the great suggestions. Continue reading “CVI Holiday gift list (sorry, no pom poms)”

CVI modifications, it’s the little things.

CVI modifications, it's the little things
CVI modifications, it’s the little things

On the brink of November, for a child with cortical visual impairment (CVI), it is still the beginning of the school year. Each school year is different for all kids, but for kids with CVI, each year may as well be a whole new school (especially when it really is a new school, new school district, new neighborhood, new city, new state, a whole new world). The CVI characteristic of novelty (Roman-Lantzy) has an impact on our kids and “new” lasts longer. Newness lingers for them, much longer than it ever would for us. Continue reading “CVI modifications, it’s the little things.”