Heading into middle school, nearing the end of summer, my son says this more and more. “Mommy, I wish people knew I have CVI.”Continue reading ““Mommy, I wish people knew I have CVI””
Some days the hardest part of your child’s cortical visual impairment (CVI) is not trying to make sense of his vision, but trying to make sense of your sensory kiddo. At least this is how it is whenever it comes to dealing with boo boos or injury, illness, sickness or trauma. Continue reading “CVI First aid”
Back to school this year resembles last year. Last year’s cross country move meant months-long preparation and purging. This year’s move came quick, with little notice in the midst of an already busy summer. Last year was a new town, state, side of the country, new school, peers, teachers, all new people. This year it’s the same school with a few new peers, new teacher, new classroom. The only constant in life is change. As usual with change comes reflection. Instead of back to school or change or growing up or growing older, this reflection is about a yellow towel. Continue reading “The yellow towel”
It should surprise no one that when it comes to movies, my son with cortical visual impairment (CVI) loves to watch the same familiar titles over and over (Novelty). Harry Potter but only Sorcerer’s Stone and Chamber of Secrets, on repeat. The original Toy Story. Finding Nemo was one of the first movies we watched intentionally, by now we have seen it countless times. Hearing Marlin explain his son Nemo on the Big Screen – “He was born with a short fin” – is a mirror. Every time, it is my voice describing my son’s disability. Every time, it is a reflection on the language we use when talking to our kids with disabilities.
Continue reading “Finding Nemo”
Summertime is a time to unwind, reset. After the end of another busy school year, it’s a time for vacation, day trips, road trips, or maybe it is simply welcome relief from the usual grind. Summer, with its unstructured days, can also be a time to get wound up. Regardless of your summer plans, no matter how blue the sky or how pleasant the weather, for children with cortical visual impairment (CVI) summer is a time of transition. Continue reading “Summer Time”