Reviewing the CVI characteristic of complexity (Roman) for a graduate class on Cortical/cerebral Visual Impairment (CVI), has me thinking about some of those early experiences with my son who has CVI. Continue reading “Seeing sensory complexity”
We don’t always talk about it but the truth is that parenting a child with a disability challenges who we are. It challenges us as the parents that we would like to be, the parents that we planned to be. In so many ways, parenting a child with a disability challenges our very nature, whoever we have come to be.
Continue reading “Parenting a child with a disability challenges who we are”
Leaving the Pacific Northwest and Seattle, the place that was home for twenty five years – twenty five years – does not feel like failure. Instead it feels like doing the right thing for my child. It feels like exhaling for the first time in nearly eight years, since my son’s diagnosis of cortical visual impairment (CVI). Continue reading “Moving mountains”
What I wish educators knew about my child who has cortical visual impairment (CVI). Continue reading “What I wish educators knew about my child with CVI”
My Beautiful Broken Brain is a documentary, much of which was shot on an iPhone, about a young woman who experiences an ischemic stroke. The film describes both who she was before stroke, as told by friends and family, and who she is since. Like so many things, My Beautiful Broken Brain is some small glimpse into the experience of my son, who also had a stroke and who lives with a brain difference, including cortical visual impairment (CVI). Continue reading “My Beautiful Broken Brain”