Moving mountains

New Year: Moving mountains
New Year: Moving mountains

Leaving the Pacific Northwest and Seattle, the place that was home for twenty five years – twenty five years – does not feel like failure. Instead it feels like doing the right thing for my child. It feels like exhaling for the first time in nearly eight years, since my son’s diagnosis of cortical visual impairment (CVI). Continue reading “Moving mountains”

My Beautiful Broken Brain

IMG_8206My Beautiful Broken Brain is a documentary, much of which was shot on an iPhone, about a young woman who experiences an ischemic stroke. The film describes both who she was before stroke, as told by friends and family, and who she is since.  Like so many things, My Beautiful Broken Brain is some small glimpse into the experience of my son, who also had a stroke and who lives with a brain difference, including cortical visual impairment (CVI). Continue reading “My Beautiful Broken Brain”

CVI literacy, adapting books and text

* Guest blog post by Judy Endicott

When helping my grandson, River, who is almost nine, I know it is critical to use his CVI Range score (Roman-Lantzy), late Phase II, and information about his CVI characteristics as my guide to modifying his literacy materials. I always remind myself that what I can see and understand is different from what River “sees” and understands. Continue reading “CVI literacy, adapting books and text”

Yes, you need to understand something about CVI if you work with my child

IMG_8875
Yes, you need to understand something about CVI if you work with my child

Social skills play groups are hard to come by. And when your child has cortical visual impairment (CVI), it is even harder. For some reason, CVI does not easily translate when it comes to speech and communication providers. Surely there are exceptions, but that has been our experience. So, among other things, the last month has been about deciding whether a play group is a good fit. Finding the right fit has been like trying to fit a square peg in a round hole. Continue reading “Yes, you need to understand something about CVI if you work with my child”