Heading into middle school, nearing the end of summer, my son says this more and more. “Mommy, I wish people knew I have CVI.”
Category: friends
With the return to in person school following a year of remote learning, the birthday party invitation came early. The real and true measure of any and all social skills goals in the IEP should be, “By June, having received all appropriate supports in place all year long, the student with CVI will be invited to X number of birthday parties.” Believe me, there is nothing so gut wrenching as attempting to explain to your child why he was not invited to the party. Here we are in November, at the first birthday party invite, for my son with CVI. Continue reading “Back to birthday parties”
Along the way of raising a child with a disability, there are moments when life seems to somehow come full circle. That’s what happened one day while reading a favorite book to my son with CVI. Continue reading ““Dandelion””
That feeling you get when taking your child with cortical visual impairment (CVI) to any place new and unfamiliar and leaving him and feeling like you have dropped him into the CVI abyss. Continue reading “CVI Abyss”
The last day of school, at last. The last day of a long year, a transition year. New school, new teachers, new students, new environment, new team mostly new to the disability of cortical visual impairment (CVI). The last weeks were about pushing through, the final sprint. New assessments and therapy appointments were put on hold. Sensory outings and activities with animals and swimming were instead written in. Today is the last Friday of second grade. Today is the last art class. Today is the last pizza day. The countdown began. Continue reading “Last day of school”
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