Last day of school

E614090D-8F7F-445E-B5BA-801CA983D218The last day of school, at last. The last day of a long year, a transition year. New school, new teachers, new students, new environment, new team mostly new to the disability of cortical visual impairment (CVI). The last weeks were about pushing through, the final sprint. New assessments and therapy appointments were put on hold. Sensory outings and activities with animals and swimming were instead written in. Today is the last Friday of second grade. Today is the last art class. Today is the last pizza day. The countdown began. Continue reading “Last day of school”

At the playground

At the playground
At the playground

If nothing else, the end of the school year is about reflection, right? This year it is also about celebrating a better school setting, and the end of another grade, by way of a playground gathering for all second graders. Along with it came a glimpse into the playground experience for my son who has cortical visual impairment (CVI). Continue reading “At the playground”

Back to school in April

09189E40-F539-48C2-B66E-874786D3C200“Wait – what??” you might be thinking. It’s only April. It’s only just now turning to spring. The return of warmer weather. Trees and  flowers blooming, longer and brighter days ahead. School is still in session. Maybe you haven’t even had your IEP meeting for your child with cortical visual impairment (CVI). Or maybe you are still struggling through this school year, let alone ready to get ready for the next one. Or maybe every morning you wake up to, “Do I have to go to school?” “Can I stay home, just today??” (A thousand times, no.) It might still be April, but it is not too early to start thinking about back to school. Continue reading “Back to school in April”

Seeing CVI at school

Seeing CVI at school
Seeing CVI at school

Yesterday was a Monday, from start to finish. You know everything is going to be  extra challenging when you drop off your child with cortical visual impairment (CVI) at school and learn that his paraprofessional is out that day. We all have our emergencies, and it was her turn. Children with CVI rely on predictability and routine, especially when it comes to their people. A day of multiple transitions is not an easy prospect. It turned out that the unexpected day provided an unexpected opportunity for his teacher to see my son’s CVI. Continue reading “Seeing CVI at school”

How do you greet a child with CVI?

How do you greet a child with CVI?
How do you greet a child with CVI?

We know that one of the ten characteristics of cortical visual impairment (CVI) is difficulty with faces, a component of Complexity (Roman-Lantzy). Knowing this, we should take some time to consider how we greet and interact with a child with CVI, remembering he is not likely to recognize you. This is essential for school teams, especially at the beginning of the school year. With a swirl of new peers, teachers, and classes, how we greet kids with CVI is so important. Continue reading “How do you greet a child with CVI?”