A horse and hemianopia

369A1C63-F808-4A4B-97B2-B0C5F7005F6BYou might be looking at this photo of a horse and thinking, What the heck does a horse have to do with CVI? With my child’s hemianopia? Recently a horse drawn hayride, pulled by these horses, provided a perfect example of what happens with hemianopia. Continue reading “A horse and hemianopia”

CVI in the hallways

CVI in the hallways
CVI in the hallways

Back to school for students with cortical visual impairment (CVI) means right back to navigating what can be brutal school hallways, sometimes even when devoid of students. In preparation for this year, I recently shared the blog post Fighting an Unwinnable Battle by Nicola McDowell, describing her emotional state by the time she arrives at class. Learning about her experience as a student and adult with cerebral visual impairment is so relatable when it comes to my child with CVI. Reading her blog helps me understand his experience in a way that few other resources can. Already this school year is a  reminder of the difficulty of navigating hallways for a student with CVI. Continue reading “CVI in the hallways”

The yellow towel

CA339CDC-C0F6-4126-8114-5A4518D2C023Back to school this year resembles last year. Last year’s cross country move meant months-long preparation and purging. This year’s move came quick, with little notice in the midst of an already busy summer. Last year was a new town, state, side of the country, new school, peers, teachers, all new people. This year it’s the same school with a few new peers, new teacher, new classroom. The only constant in life is change. As usual with change comes reflection. Instead of back to school or change or growing up or growing older, this reflection is about a yellow towel. Continue reading “The yellow towel”

At the playground

At the playground
At the playground

If nothing else, the end of the school year is about reflection, right? This year it is also about celebrating a better school setting, and the end of another grade, by way of a playground gathering for all second graders. Along with it came a glimpse into the playground experience for my son who has cortical visual impairment (CVI). Continue reading “At the playground”

At the store with my child who has CVI

At the store with my child who has CVI
At the store with my child who has CVI

“You guys sure go to the store a lot!” Last week was all about parent teacher conferences, and both the classroom teacher and resource room teacher made the same comment. It is true that my son enjoys going to stores, especially food shopping. It is also true that we do many other things, like hikes, walks, the beach, riding bikes – in addition to a never ending schedule of medical and therapy appointments. But our outside excursions are not the activities that make their way back to the classroom. My suspicion is that his focus on stores and places has more to do with getting to know a novel community, and the lay of the land, along with the social experience of it all. That both teachers commented  made me think of all the things you can do at the store, when your child has cortical visual impairment (CVI).
Continue reading “At the store with my child who has CVI”