At the playground

At the playground
At the playground

If nothing else, the end of the school year is about reflection, right? This year it is also about celebrating a better school setting, and the end of another grade, by way of a playground gathering for all second graders. Along with it came a glimpse into the playground experience for my son who has cortical visual impairment (CVI). Continue reading “At the playground”

At the store with my child who has CVI

At the store with my child who has CVI
At the store with my child who has CVI

“You guys sure go to the store a lot!” Last week was all about parent teacher conferences, and both the classroom teacher and resource room teacher made the same comment. It is true that my son enjoys going to stores, especially food shopping. It is also true that we do many other things, like hikes, walks, the beach, riding bikes – in addition to a never ending schedule of medical and therapy appointments. But our outside excursions are not the activities that make their way back to the classroom. My suspicion is that his focus on stores and places has more to do with getting to know a novel community, and the lay of the land, along with the social experience of it all. That both teachers commented  made me think of all the things you can do at the store, when your child has cortical visual impairment (CVI).
Continue reading “At the store with my child who has CVI”

“Cortical Visual Impairment: Advanced Principles”

Cortical Visual Impairment: An Approach to Assessment and Intervention
Cortical Visual Impairment: An Approach to Assessment and Intervention

In 2012, reading Cortical Visual Impairment: An Approach to Assessment and Intervention for the first time, was not about reading about a complex neurological condition. As the parent of a child with cortical visual impairment (CVI), reading that book, was reading about my son. It was somebody describing my child to me. Everything that he did, all of his behaviors, came into focus and made sense. Ever since, I have continued to learn as much as possible about my son’s cortical visual impairment. Continue reading ““Cortical Visual Impairment: Advanced Principles””

This is how we live.

CVI: This is how we live.
CVI: This is how we live.

When you are raising a child with cortical visual impairment (CVI), life looks different. It not only looks different for your child, it looks different for parents. CVI accommodations do not end on Friday afternoon when the school bell rings. For CVI families, accommodations happen all the time, everywhere, all day long, all the way up to and including bedtime. The accommodation follows the child with CVI…everywhere. Even on the weekend. Continue reading “This is how we live.”

Moving mountains

New Year: Moving mountains
New Year: Moving mountains

Leaving the Pacific Northwest and Seattle, the place that was home for twenty five years – twenty five years – does not feel like failure. Instead it feels like doing the right thing for my child. It feels like exhaling for the first time in nearly eight years, since my son’s diagnosis of cortical visual impairment (CVI). Continue reading “Moving mountains”