“Guess Who?” game in Phase III CVI

IMG_9685This one is just for fun, because kids with CVI like to have fun. We can play a game and approach it from the perspective of cortical visual impairment (CVI). A good friend recently gave Jasper a game called “Guess Who?” My worry was that it was about recognizing facial expressions. Turns out it is more about recognizing visual details than expressions. And turns out that my son adores this game. Continue reading ““Guess Who?” game in Phase III CVI”

“Does the mailman know Santa?”

Does the mailman know Santa?
“Does the mailman know Santa?”

As parents, and especially as parents of children who have cortical visual impairment (CVI), we worry about many things. One of the things we worry about most is knowing that our child’s unique educational needs are not being met and supported. In those first years, that critical period of neurodevelopment, parents work hard to get a CVI diagnosis, a CVI Range assessment (Roman-Lantzy), and improve their child’s use of functional vision. We become fluent in the language of CVI. We color highlight, strictly adhere to complexity of array, and speak in salient features. Only to hand our child off when it comes time for transition to public school, and our well honed educational approaches fall by the wayside. Worksheets are highlighted in anything but preferred color yellow. Reading materials are simply enlarged instead of modified. The silhouettes of abstract black and white line drawings are quickly highlighted in whatever color marker was handy. We spend our time arguing with school district administrators about the need to include salient features and comparative language in the IEP (Roman). And the critical question to my son’s learning, What do you see? goes unasked, day after day, for the entire school calendar. Continue reading ““Does the mailman know Santa?””

CVI literacy, adapting books and text

* Guest blog post by Judy Endicott

When helping my grandson, River, who is almost nine, I know it is critical to use his CVI Range score (Roman-Lantzy), late Phase II, and information about his CVI characteristics as my guide to modifying his literacy materials. I always remind myself that what I can see and understand is different from what River “sees” and understands. Continue reading “CVI literacy, adapting books and text”

Literacy materials for Phase II and Phase III CVI

* Guest blog post by Judy Endicott

I am in awe of the families who belong to the community of cortical visual impairment (CVI) learners, of Christine Roman-Lantzy and all the others who have taught me about CVI. Everyone’s journey into the world of CVI has been different, but our common quest for knowledge has created a powerful force for change. Thank you all for your sharing your knowledge! Continue reading “Literacy materials for Phase II and Phase III CVI”