I’d know you anywhere

IMG_4722“Mommy, if you can’t find me, look for my orange shirt!” When we go running.

“I knew it was you because of your blue bag..” At the grocery store.

It is no coincidence that most of our things are brightly colored: shirts, jackets, bags, hat, bike…the car. Wherever we go we talk about how to find familiar people and how wearing a bright solid color sometimes helps my son who has cortical visual impairment (CVI), recognize or at least find me, his mom. Continue reading “I’d know you anywhere”

Change is hard

IMG_2204A new school year. Substitute teachers. The new student in class. An unexpected fire drill and, God forbid, the lockdown drill. A different para today. Meeting a new provider for a new therapy appointment. For children with cortical visual impairment (CVI), a typical day is a long day of constant change. We are all familiar with Heraclitus’ quote: “Change is the only constant in life.” For a child with CVI, when we talk about change, we are talking about novelty (Roman). Continue reading “Change is hard”

CVI Iceberg

CVI icebergThe first Start Seeing CVI t-shirt was created with the idea that when an educator looks at a child with cortical visual impairment, they would see the CVI, the ten characteristics (Roman). It is intended as a reminder: “I need to talk to him, I’d better take him to a quiet, less noisy spot” or “I’m showing her this object, I need to remember to hold it over to her left” or “I’m color highlighting this photograph against a plain background, I’ll be sure to use his preferred color yellow.” Each time, you are reminded of ten things to be mindful of when working with that child. Continue reading “CVI Iceberg”

A horse and hemianopia

369A1C63-F808-4A4B-97B2-B0C5F7005F6BYou might be looking at this photo of a horse and thinking, What the heck does a horse have to do with CVI? With my child’s hemianopia? Recently a horse drawn hayride, pulled by these horses, provided a perfect example of what happens with hemianopia. Continue reading “A horse and hemianopia”