It is time to catch up with children who have CVI

SeeingCVISeptember is CVI Awareness month. CVI is a brain based visual impairment, that means it’s a problem with the brain, not the eyes. CVI is about visual interpretation and visual recognition, it is not about acuity (Mazel). People with CVI see what we see, but they cannot interpret it (Roman). CVI is the leading cause of visual impairment in children. And it has been since the 1990s. Continue reading “It is time to catch up with children who have CVI”

This is the year we Start Seeing CVI

This is the year we Start Seeing CVI
This is the year we Start Seeing CVI

As the parent of a young child who has cortical visual impairment (CVI), I have explained my son’s diagnosis to countless providers. When I say providers, we are talking about early childhood educators and interventionists, neurologists, occupational therapists (OT), ophthalmologists, optometrists, orientation and mobility specialists (O&M), pediatricians, physical therapists, special educators, speech language pathologists, and especially teachers of the visually impaired (TVI). Because of the lack of awareness, education, and knowledge of CVI across the board, it has fallen to this CVI mom to educate everybody who works with my son. When you are a parent of a child with CVI, you spend every single day fighting for your child to receive appropriate services, an appropriate education, and access to the curriculum and the world. Continue reading “This is the year we Start Seeing CVI”