Hiking with a CVI perspective

Hiking with a CVI perspective
Hiking with a CVI perspective

“Stay on the right side of the path…”

Most of the time, regardless of the season, we hike at least once a week. If you were trailing along behind us, you would hear me calling out different iterations of the phrase, Stay to the right... Over and over, often in short succession. Continue reading “Hiking with a CVI perspective”

“Guess Who?” game in Phase III CVI

IMG_9685This one is just for fun, because kids with CVI like to have fun. We can play a game and approach it from the perspective of cortical visual impairment (CVI). A good friend recently gave Jasper a game called “Guess Who?” My worry was that it was about recognizing facial expressions. Turns out it is more about recognizing visual details than expressions. And turns out that my son adores this game. Continue reading ““Guess Who?” game in Phase III CVI”

CVI literacy, adapting books and text

* Guest blog post by Judy Endicott

When helping my grandson, River, who is almost nine, I know it is critical to use his CVI Range score (Roman-Lantzy), late Phase II, and information about his CVI characteristics as my guide to modifying his literacy materials. I always remind myself that what I can see and understand is different from what River “sees” and understands. Continue reading “CVI literacy, adapting books and text”

Birthday party

Birthday party
Birthday party

Going to birthday parties is a childhood rite of passage. When you have a kid with cortical visual impairment (CVI), invitations bring a mix of anticipation and dread. Anticipation because you want your child to be included in the first place – just like all the other kids. And dread because celebrations, events, gatherings, parties are a delicate balance for kids with CVI. Birthday parties can involve some of the most challenging characteristics of cortical visual impairment – a party in a new environment (novelty), lots of kids (complexity, difficulty with faces, complexity of array), and energetic little bodies (latency, movement). Add the sounds of a bunch of excited kids and you have one Complex sensory environment. (Roman-Lantzy) Birthdays are a perfect storm for a CVI meltdown. Continue reading “Birthday party”

National CVI Advocacy Call 3/14

A call for CVI advocacy“CVI parents are the busiest parents I know,” Christine Roman says this often. Now, CVI moms are busy working on CVI advocacy. Next up is a national phone call – initiated by a CVI mom – to begin a conversation on improving education and services for our kids with cortical visual impairment (CVI), the leading cause of visual impairment in children in the US.

There is a disservice when it comes to serving students with cortical visual impairment. Our children are denied equal access to appropriate assessments, interventions and services and they deserve better. Join us to begin a conversation about CVI advocacy and improving education and services for our kids.

CVI parents, we need your voices – please join us on the evening of Wednesday, March 14, 5:30 PDT / 8:30 EDT.

Special thanks to American Foundation for the Blind (AFB) for sponsoring this national conversation. Panelists, including CVI parents, will be announced soon.

Click for details CVI Advocacy National Teleconference Call

Wednesday Evening, March 14, 2018
5:30pm Pacific / 8:30pm Eastern

To join this free call:
Dial: 1-866-939-3921
Code: 46438061