National CVI Advocacy Call 3/14

A call for CVI advocacy“CVI parents are the busiest parents I know,” Christine Roman says this often. Now, CVI moms are busy working on CVI advocacy. Next up is a national phone call – initiated by a CVI mom – to begin a conversation on improving education and services for our kids with cortical visual impairment (CVI), the leading cause of visual impairment in children in the US.

There is a disservice when it comes to serving students with cortical visual impairment. Our children are denied equal access to appropriate assessments, interventions and services and they deserve better. Join us to begin a conversation about CVI advocacy and improving education and services for our kids.

CVI parents, we need your voices – please join us on the evening of Wednesday, March 14, 5:30 PDT / 8:30 EDT.

Special thanks to American Foundation for the Blind (AFB) for sponsoring this national conversation. Panelists, including CVI parents, will be announced soon.

Click for details CVI Advocacy National Teleconference Call

Wednesday Evening, March 14, 2018
5:30pm Pacific / 8:30pm Eastern

To join this free call:
Dial: 1-866-939-3921
Code: 46438061

 

Start Seeing CVI at NIH

Thank you to CVI mom Rachel for sharing your photo and wearing your t-shirt and raising awareness of cortical visual impairment (CVI). Every time you wear your t-shirt, or tell someone “My child has cortical visual impairment” or explain CVI to the 1,000th person who says “I have never heard of that,” you help to raise awareness of CVI.

From Rachel:

image1“At our yearly visit to the National Institutes of Health (NIH). This time they heard all about cortical visual impairment (CVI)—the leading cause of visual impairment in children in the U.S. The medical and educational fields have been slow to respond to kids with cortical visual impairment and CVI moms from across the country are joining together to change this. Here’s to the year of being a CVI tiger mom.”

Rachel shared that this was Henry’s fourth annual visit to NIH. After she provided Henry’s CVI Range Assessment report, the doctors referred to CVI as “central visual impairment” in the discussion that followed.

Share your Start Seeing CVI t-shirt photos on our Facebook page or email your photo and story to StartSeeingCVI@gmail.com.