My son was diagnosed with Cortical Visual Impairment (CVI) in 2011, following infant stroke at birth. Cortical visual impairment is the leading cause of visual impairment in children in the US, and developed countries. My work is learning as much as possible about CVI. Start Seeing CVI and its Facebook page were created in response to the overwhelming need for advocacy and awareness around CVI in our kids.
We live in Seattle, WA.