My son was diagnosed with cortical visual impairment (CVI) in 2011, following infant stroke at birth. CVI is the leading cause of visual impairment in children in the US. My work is learning as much as possible about CVI. Currently I am working on completing my vision studies (TVI program) at University of Massachusetts at Boston, the only program in the country with a dedicated, required course on CVI and the CVI Range. Start Seeing CVI and its Facebook page were created in response to the overwhelming need for advocacy and awareness around CVI in our kids.
To contact me send an email to StartSeeingCVI@gmail.com.