Heading into middle school, nearing the end of summer, my son says this more and more. “Mommy, I wish people knew I have CVI.”
Category: cvi awareness
“He’s just so…UNIQUE.”
“I’m not sure we would have the expertise needed to assess her.”
“He almost sounds like… a case study.”
“He sounds too complex to be evaluated.”
Some days our kids with cortical visual impairment (CVI) really put the special in the term “special needs.” Lately, in yet another quest to find a provider to conduct an appropriate assessment, it is back to this all too familiar language when it comes to talking about our children with CVI. Continue reading “Let’s change the way we talk about kids with CVI”
Start Seeing CVI has two updated kids’ t-shirts. These will be added to the Buy the t-shirt page soon but you can find them here anytime. If you are in need of something slightly tweaked, like back side or sizes, please get in touch and I’ll do my best to help. Continue reading “Updated Start Seeing CVI t-shirts, kids’”
September is the first official CVI Awareness Month. Cortical visual impairment (CVI) has been the leading cause of visual impairment in children in the U.S. since the 1990s. CVI is the public health crisis that you haven’t heard of. For parents of children with cortical visual impairment, every day – every medical appointment, every school meeting, every therapy appointment, every inquiry from a well meaning, random stranger – is about CVI Awareness. Continue reading “September is CVI Awareness Month”
Introducing the Start Seeing CVI tote! Raise awareness of the leading cause of visual impairment in children, cortical visual impairment (CVI), everywhere you go. Totes can be ordered on an ongoing basis, but are only printed on demand, so be sure to allow plenty of time for processing and shipping. Continue reading “Start Seeing CVI tote!”
Start Seeing CVI 