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Uncategorized, Yes, you need to understand something about CVI if you work with my child

Yes, you need to understand something about CVI if you work with my child

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Yes, you need to understand something about CVI if you work with my child

Social skills play groups are hard to come by. And when your child has cortical visual impairment (CVI), it is even harder. For some reason, CVI does not easily translate when it comes to speech and communication providers. Surely there are exceptions, but that has been our experience. So, among other things, the last month has been about deciding whether a play group is a good fit. Finding the right fit has been like trying to fit a square peg in a round hole. Continue reading “Yes, you need to understand something about CVI if you work with my child” →

cortical visual impairment, glassybaby and PCVI Society

glassybaby and PCVI Society

glassybabyglassybaby is a nonprofit here in Seattle that creates handcrafted blown glass votives. Ten percent of every glassybaby is donated to the white light fund to help people, animals, and the planet heal. Last June, I nominated the Pediatric Cortical Visual Impairment Society for a glassybaby babygrant, and PCVI was awarded $6,000. If you are a parent, or work with a child who has cortical visual impairment (CVI) you know there is a critical need for awareness, education, and knowledgeable, qualified providers, from diagnosis all the way through the school years. PCVI Society is the only organization devoted solely to children who have CVI. Continue reading “glassybaby and PCVI Society” →

cortical visual impairment, CVI

Point.

polar bear jams_SQ
Point.

Clapping, waving, pointing. For the longest time these have been descriptors for Jasper’s cortical visual impairment, explaining what his vision is, and what it is not. Well, he still doesn’t clap, wave, or point. To countless store clerks who insist on waving goodbye to young children, We’re still working on bye bye…. I say, smiling and walking away. We have practiced each one – clap, wave, point – in context, for over two years. Practiced. In our failed PEPS group, when Jasper was about a year old, another mom described her highlight of the week: when she came home from work, her six month old baby, waved to her, she squealed. Had you been practicing?? I desperately wanted to know. How did she get her baby to do that? And how could I get my own, older baby to do that? And what’s so great about waving bye bye after all? Continue reading “Point.” →