glassybaby and PCVI Society

glassybabyglassybaby is a nonprofit here in Seattle that creates handcrafted blown glass votives. Ten percent of every glassybaby is donated to the white light fund to help people, animals, and the planet heal. Last June, I nominated the Pediatric Cortical Visual Impairment Society for a glassybaby babygrant, and PCVI was awarded $6,000. If you are a parent, or work with a child who has cortical visual impairment (CVI) you know there is a critical need for awareness, education, and knowledgeable, qualified providers, from diagnosis all the way through the school years. PCVI Society is the only organization devoted solely to children who have CVI.

On October 18, we are having an in-store event at glassybaby Madrona. From 10 am to 7 pm that day (pacific time), 10% from all in store purchases and phone orders to 206-518-9071 (sorry, no online orders) will be donated to the Pediatric CVI Society, and all US orders receive free shipping. glassybaby make wonderful gifts for friends, providers, or a votive or drinker in your child’s preferred color for yourself.

Please share widely with friends, family, and anyone who cares about cortical visual impairment. Your support means so much to our kids with CVI.

Below is the original nomination submission for the glassybaby babygrant.

jasper_glassybabyDear glassybaby:

Over the last few years I have acquired six glassybaby, and given several as gifts. Early on, I knew one of them would need to be yellow and I purchased ‘rubber duckie’ as my second glassybaby. Yellow is my son’s preferred color. My son has a ‘preferred color’ because he has a condition called cortical visual impairment (CVI). Jasper was diagnosed with CVI at one week old, following infant stroke at birth. CVI is a brain based visual impairment – the problem is not with my son’s eyes but with visual processing that happens in the brain. CVI is the leading cause of visual impairment in children in the US, but most people have not heard of it. As I moved forward with early intervention services and advocating for my son, that lack of awareness has been one of the hardest lessons.

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