Last day of school

E614090D-8F7F-445E-B5BA-801CA983D218The last day of school, at last. The last day of a long year, a transition year. New school, new teachers, new students, new environment, new team mostly new to the disability of cortical visual impairment (CVI). The last weeks were about pushing through, the final sprint. New assessments and therapy appointments were put on hold. Sensory outings and activities with animals and swimming were instead written in. Today is the last Friday of second grade. Today is the last art class. Today is the last pizza day. The countdown began. Continue reading “Last day of school”

CVI early bird

EF8A311F-C4DB-4762-9326-9B9F79BA7807“Hi, how long is open swim today?”

“Until three… pool’s empty right now.”

“EMPTY??” We’ll be right. There.

It was Memorial Day and it made sense that most people were out of town or out at the beach or out at a barbecue instead of at the local Y. ┬áThe prospect of having an entire, not quite Olympic sized pool all to ourselves, me and my son who has cortical visual impairment (CVI), was almost too good to be true. Continue reading “CVI early bird”

At the playground

At the playground
At the playground

If nothing else, the end of the school year is about reflection, right? This year it is also about celebrating a better school setting, and the end of another grade, by way of a playground gathering for all second graders. Along with it came a glimpse into the playground experience for my son who has cortical visual impairment (CVI). Continue reading “At the playground”

Let’s change the way we talk about kids with CVI

Let's change the way we talk about kids with CVI
Let’s change the way we talk about kids with CVI

“He’s just so…UNIQUE.”

“I’m not sure we would have the expertise needed to assess her.”

“He almost sounds like… a case study.”

“He sounds too complex to be evaluated.”

Some days our kids with cortical visual impairment (CVI) really put the special in the term “special needs.”┬áLately, in yet another quest to find a provider to conduct an appropriate assessment, it is back to this all too familiar language when it comes to talking about our children with CVI. Continue reading “Let’s change the way we talk about kids with CVI”

Quote from a CVI parent

On the Start Seeing CVI Facebook page you can find many graphics. But this one is too good and too important not to share via this blog. The quote comes from Rachel Bennett, a CVI mom. You may have seen Rachel’s blog posts on Paths to Literacy. She perfectly captures the reality for parents of children with cortical visual impairment (CVI). Continue reading “Quote from a CVI parent”