This is how we live.

CVI: This is how we live.
CVI: This is how we live.

When you are raising a child with cortical visual impairment (CVI), life looks different. It not only looks different for your child, it looks different for parents. CVI accommodations do not end on Friday afternoon when the school bell rings. For CVI families, accommodations happen all the time, everywhere, all day long, all the way up to and including bedtime. The accommodation follows the child with CVI…everywhere. Even on the weekend. Continue reading “This is how we live.”

Trick or treating with CVI

Trick or treating with CVI
Trick or treating with CVI

“Mommy, I can’t wear my glasses trick or treating because my mask goes over my face.” Until then it had not occurred to me that his head to toe Batman costume meant that friends would not likely recognize him at the first trick or treat in our new town.  Stricter school security meant no access to classrooms, no access to kids, parents, families at his new school. The hope was that Halloween would mean bumping into some new school friends, meeting other families. Having a child with cortical visual impairment (CVI) who cannot recognize faces, makes it extra hard to recognize friends on Halloween. Continue reading “Trick or treating with CVI”

Waiting to play

Waiting to play
Waiting to play

On an unhurried summer day, at last, we stopped at a favorite playground. For my son who has cortical visual impairment (CVI), favorite playground means ample tree shade (photosensitive, though he won’t always admit it). It also means a good selection of slides, such as “curly slide.” Slides have been his preferred playground play for some time. Slides are downhill, his favorite. Slides are fairly easy, once you figure out how to navigate to the top, not always accessible or obvious to a child with CVI. Ladder can look like lots of different things. Lastly, slides are fastContinue reading “Waiting to play”