Start Seeing CVI

cortical visual impairment, CVI, Dr James Jan

Dr James Jan quote

Great quote from Dr James Jan, to whom we owe so much for his contributions on cortical visual impairment (CVI). Dr Jan’s work of studying, defining, and writing about CVI began in the 1980s. The quote illustrated here was traced back to 2001. #StartSeeingCVI2018

“Traditionally, educators for the visually impaired assisted only those whose eye conditions were associated with visual loss (reduced acuity). Now it has become necessary to offer services for those whose visual loss is due to brain damage. Thus, the definition of CVI was born.”

– Dr James E. Jan, 2001

CVI, CVI Parent Survey, parents

CVI Parent Survey

If you are the parent or caregiver of a child with cortical visual impairment (CVI), please fill out this brief, confidential survey. The survey is in collaboration with a study group to learn about parent and caregiver perceptions of the information, support, and education for children with CVI. Findings will be published in an upcoming journal. Your response and feedback is critically needed.

If you work with children who have CVI, please share the survey with your families.

CVI Parents/Caregivers Survey

education

ModMath app for kids with writing issues

ModMath is a math app that was created by parents, to help their child who has a learning disability and difficulty with handwriting. The free app “provides students a pencil free platform for doing basic arithmetic” equations including addition, subtraction, multiplication and division. Many of our kids with cortical visual impairment (CVI) also have difficulty with fine motor tasks like handwriting. ModMath could be a good option for students with CVI. A bonus would be the ability to color code math equations. The verdict is still out on that, but the question has been proposed.

Husband-and-Wife Team Create Free Math App for Kids With Writing Issues

National CVI Advocacy Call 3/14

“CVI parents are the busiest parents I know,” Christine Roman says this often. Now, CVI moms are busy working on CVI advocacy. Next up is a national phone call – initiated by a CVI mom – to begin a conversation on improving education and services for our kids with cortical visual impairment (CVI), the leading cause of visual impairment in children in the US.

There is a disservice when it comes to serving students with cortical visual impairment. Our children are denied equal access to appropriate assessments, interventions and services and they deserve better. Join us to begin a conversation about CVI advocacy and improving education and services for our kids.

CVI parents, we need your voices – please join us on the evening of Wednesday, March 14, 5:30 PDT / 8:30 EDT.

Special thanks to American Foundation for the Blind (AFB) for sponsoring this national conversation. Panelists, including CVI parents, will be announced soon.

Click for details CVI Advocacy National Teleconference Call

Wednesday Evening, March 14, 2018
5:30pm Pacific / 8:30pm Eastern

To join this free call:
Dial: 1-866-939-3921
Code: 46438061

CVI-TVI Survey

A group of teachers of the visually impaired (TVI) have created a survey, link below, to find out how colleagues learn about cortical visual impairment (CVI). If you are a TVI, please complete the survey and share with your networks.

We are fellow Teachers of the Visually Impaired who are working with collaborators in a study group to investigate Cortical/Cerebral Vision Impairment (CVI). We are interested in learning more about how our colleagues across the US are gaining knowledge about CVI and how comfortable they feel about addressing this visual condition.

Matt Tietjen and Peg Palmer are TVIs working for BESB (Bureau of Education and Services for the Blind) in Connecticut.

Ellen Mazel is the CVI Program Manager at the Perkins School for the Blind in Watertown, Massachusetts and author of the blog “CVI Teacher.”

We guarantee that we will not use or share any of your personal information, your job or your personal circumstances. All responses will be completely anonymous.

Thanks for your help on this. We really appreciate the time you will take to fill out the following questions.

CVI-TVI Survey