With the return to in person school following a year of remote learning, the birthday party invitation came early. The real and true measure of any and all social skills goals in the IEP should be, “By June, having received all appropriate supports in place all year long, the student with CVI will be invited to X number of birthday parties.” Believe me, there is nothing so gut wrenching as attempting to explain to your child why he was not invited to the party. Here we are in November, at the first birthday party invite, for my son with CVI. Continue reading “Back to birthday parties”
Author: StartSeeingCVI
Increasing awareness of Cortical Visual Impairment (CVI). CVI is the leading cause of visual impairment in children.
Sometimes when you are stuck, it helps to go back to the beginning. The beginning of CVI came early, along with my son’s arrival in the world. There wasn’t a time when he did not have CVI. As a single parent, and especially finding yourself the single parent of a child with a disability, the only thing I knew for certain was, I’m going to need help. Continue reading “Sometimes when you are stuck”
On Halloween, children of all abilities go trick or treating.
The child who comes to your door but avoids eye contact may have difficulty looking at faces (complexity).
The child who is upset in a crowd may have difficulty with complex sensory environments and sensory integration.
The child who takes f o r e v e r to pick out a single piece of candy may have difficulty with overwhelming complexity.
The child who wears the same costume three years in a row may have difficulty with novelty.
The child who excitedly tells everybody “Happy Halloween!” beginning loooong before October 31st, may be practicing his script. Continue reading ““Happy Halloween!””
April is CVI Literacy Awareness Month. Our students with CVI are diverse learners and there is, as of yet, no one approach that works for each child, every time. How I wish there were, what a wonderful world that would be! Instead here are some ideas, recollections, tools, and promising resources.
Continue reading “CVI Literacy Resources”
Along the way of raising a child with a disability, there are moments when life seems to somehow come full circle. That’s what happened one day while reading a favorite book to my son with CVI. Continue reading ““Dandelion””
Start Seeing CVI 