Sometimes when you are stuck

Sometimes when you are stuck, it helps to go back to the beginning. The beginning of CVI came early, along with my son’s arrival in the world. There wasn’t a time when he did not have CVI. As a single parent, and especially finding yourself the single parent of a child with a disability, the only thing I knew for certain was, I’m going to need help. Continue reading “Sometimes when you are stuck”

“Happy Halloween!”

On Halloween, children of all abilities go trick or treating.

The child who comes to your door but avoids eye contact may have difficulty looking at faces (complexity).

The child who is upset in a crowd may have difficulty with complex sensory environments and sensory integration.

The child who takes f o r e v e r to pick out a single piece of candy may have difficulty with overwhelming complexity.

The child who wears the same costume three years in a row may have difficulty with novelty.

The child who excitedly tells everybody “Happy Halloween!” beginning loooong before October 31st, may be practicing his script. Continue reading ““Happy Halloween!””

“Coronaviress”

BB60D3C5-264B-46F7-B273-F1E366C80A4F“Everything is cancelled.”

All of his questions have the same response. I don’t know – everything is cancelled. We can’t do that right noweverything is cancelled. We can’t go there right noweverything is cancelled. When you have a sensory kid with CVI who exists on certainty and routine and predictability and structure, providing normalcy and certainty right now feels impossible. In this time of coronavirus, his CVI, his sensory experience, his worries, are not cancelled. Continue reading ““Coronaviress””