Walking with my son this morning, we pick up an autumn leaf to look at together. He holds the leaf in his small hands. Continue reading “‘What colors do you see?’”
Category: cortical visual impairment
Have you ever wondered ‘Why We Miss Objects That Are Right in Front of Us’? Insightful New York Times article on how expectations affect our visual perception. It is hard not to think of the implications for a child who has cortical visual impairment. The simulation is almost like a CVI Complexity Sequence card for those who do not live with CVI. And it brings to mind the words of Christine Roman-Lantzy: “For a child with CVI, seeing is easier when they know what to look for.” Continue reading “‘Why We Miss Objects That Are Right in Front of Us’ NYT article”
glassybaby is a nonprofit here in Seattle that creates handcrafted blown glass votives. Ten percent of every glassybaby is donated to the white light fund to help people, animals, and the planet heal. Last June, I nominated the Pediatric Cortical Visual Impairment Society for a glassybaby babygrant, and PCVI was awarded $6,000. If you are a parent, or work with a child who has cortical visual impairment (CVI) you know there is a critical need for awareness, education, and knowledgeable, qualified providers, from diagnosis all the way through the school years. PCVI Society is the only organization devoted solely to children who have CVI. Continue reading “glassybaby and PCVI Society”
Waiting outside the classroom door for our kids to be dismissed, another mom smiled to me and said, “Let me know if there is anything Ben can do to help Jasper.” This mom was not yet familiar, and all at once a stunned gratitude welled up inside me. This other mom obviously had some awareness of Jasper’s cortical visual impairment (CVI). Continue reading “How your child can help my child who has CVI”
The face your child makes when he cannot recognize you. I am there, maybe twenty feet in front of him, calling his name. The balmy therapy pool is not busy but the indoor acoustics of water and splashing and concrete interfere with the sensory processing necessary for locating mommy by voice. Cortical visual impairment interferes with sorting out and distinguishing the visual information of mommy, and the background grid of cubbies stuffed with tote bags, shoes and brightly colored towels. Standing almost directly in front of him, my son moves his head to the left, shifting me into his right, or preferred visual field, unsure of whether he hears his mother’s voice, and unsure where to find me in that space. Continue reading “‘So hard, this CVI’”
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