Some days the hardest part of your child’s cortical visual impairment (CVI) is not trying to make sense of his vision, but trying to make sense of your sensory kiddo. At least this is how it is whenever it comes to dealing with boo boos or injury, illness, sickness or trauma. Continue reading “CVI First aid”
It is hard to be the constant bearer of hard things. Hard to tell him about yet another appointment. Hard to tell him about another assessment. Hard to tell him about a new diagnosis. Hard to tell him about, perhaps, another intervention. Hard to tell him it’s an early pick up day, because a change in routine is hard. You do not look for more things, but you follow up. You do all you can now, in the hope of making life easier for him down the road. Nobody said parenting a child with cortical visual impairment (CVI) is easy. Nobody said it today. Continue reading “Hard things”
“Mommy, if you can’t find me, look for my orange shirt!” When we go running.
“I knew it was you because of your blue bag..” At the grocery store.
It is no coincidence that most of our things are brightly colored: shirts, jackets, bags, hat, bike…the car. Wherever we go we talk about how to find familiar people and how wearing a bright solid color sometimes helps my son who has cortical visual impairment (CVI), recognize or at least find me, his mom. Continue reading “I’d know you anywhere”
We don’t always talk about it but the truth is that parenting a child with a disability challenges who we are. It challenges us as the parents that we would like to be, the parents that we planned to be. In so many ways, parenting a child with a disability challenges our very nature, whoever we have come to be.
Continue reading “Parenting a child with a disability challenges who we are”
A new school year. Substitute teachers. The new student in class. An unexpected fire drill and, God forbid, the lockdown drill. A different para today. Meeting a new provider for a new therapy appointment. For children with cortical visual impairment (CVI), a typical day is a long day of constant change. We are all familiar with Heraclitus’ quote: “Change is the only constant in life.” For a child with CVI, when we talk about change, we are talking about novelty (Roman). Continue reading “Change is hard”