“Cortical Visual Impairment: Advanced Principles”

Cortical Visual Impairment: An Approach to Assessment and Intervention
Cortical Visual Impairment: An Approach to Assessment and Intervention

In 2012, reading Cortical Visual Impairment: An Approach to Assessment and Intervention for the first time, was not about reading about a complex neurological condition. As the parent of a child with cortical visual impairment (CVI), reading that book, was reading about my son. It was somebody describing my child to me. Everything that he did, all of his behaviors, came into focus and made sense. Ever since, I have continued to learn as much as possible about my son’s cortical visual impairment. Continue reading ““Cortical Visual Impairment: Advanced Principles””

This is how we live.

CVI: This is how we live.
CVI: This is how we live.

When you are raising a child with cortical visual impairment (CVI), life looks different. It not only looks different for your child, it looks different for parents. CVI accommodations do not end on Friday afternoon when the school bell rings. For CVI families, accommodations happen all the time, everywhere, all day long, all the way up to and including bedtime. The accommodation follows the child with CVI…everywhere. Even on the weekend. Continue reading “This is how we live.”

Moving mountains

New Year: Moving mountains
New Year: Moving mountains

Leaving the Pacific Northwest and Seattle, the place that was home for twenty five years – twenty five years – does not feel like failure. Instead it feels like doing the right thing for my child. It feels like exhaling for the first time in nearly eight years, since my son’s diagnosis of cortical visual impairment (CVI). Continue reading “Moving mountains”

“CVI Adaptations: Bubble Words in the YouDoodle App”

"CVI Adaptations: Bubble Words in the YouDoodle App"
“CVI Adaptations: Bubble Words in the YouDoodle App”

One of the most common questions from parents of children with cortical visual impairment (CVI) is, how do I approach literacy? Below is a link to a post from a CVI mom on how the “whole word” approach to literacy, developed by Christine Roman-Lantzy, and how to create “bubble words” in the YouDoodle app. Continue reading ““CVI Adaptations: Bubble Words in the YouDoodle App””

Back to school with Phase III CVI

Back to school: Phase III CVI
Back to school with Phase III CVI

Back to school means, once again, thinking about how to explain cortical visual impairment (CVI) to educators who are new to your child’s educational team. When your child is in Phase III CVI (Roman-Lantzy) this means starting with the basics  – the CVI ten characteristics, the three Phases and their goals, and the CVI guiding principles – then making the light speed jump to Phase III CVI and why it is different. Continue reading “Back to school with Phase III CVI”