Increasing awareness of cortical visual impairment (CVI), the leading cause of visual impairment in children
When you are raising a child with cortical visual impairment (CVI), life looks different. It not only looks different for your child, it looks different for parents. CVI accommodations do not end on Friday afternoon when the school bell rings. For CVI families, accommodations happen all the time, everywhere, all day long, all the way up to and including bedtime. The accommodation follows the child with CVI…everywhere. Even on the weekend. Continue reading “This is how we live.”
Leaving the Pacific Northwest and Seattle, the place that was home for twenty five years – twenty five years – does not feel like failure. Instead it feels like doing the right thing for my child. It feels like exhaling for the first time in nearly eight years, since my son’s diagnosis of cortical visual impairment (CVI). Continue reading “Moving mountains”
When your child with CVI comes into the classroom, it is often the first time that educators are hearing the words “cortical/cerebral visual impairment.” Training new educational teams or therapists or providers on CVI means learning about the visual brain, CVI Range, guiding principles, CVI behaviors and characteristics, the goals of each CVI Phase, and what CVI looks like for your child. In all of this, the approaches of salient features and comparative language (Roman) can get lost in the mix. Continue reading ““Does the mailman know Santa?””
If you are the parent of a child with cortical visual impairment (CVI), why would you read a book about children with autism? Children with CVI and children with autism are different, their brains are different, but they share some behaviors. So much so that, when educators or therapists or providers see those behaviors in your child, the tendency is to see autism, and not to see CVI. Those shared behaviors were the motivation for reading Uniquely Human: A Different Way of Seeing Autism. Continue reading ““Uniquely Human””
It’s not too late for the Start Seeing CVI holiday gift list. You won’t find red pom poms here because children with cortical visual impairment (CVI) like more than just pom poms (and besides, you already know where to buy pom poms and bright flashy toys). What follows are gift ideas from busy CVI moms (especially at this time of the year). Many thanks for the great suggestions. Continue reading “CVI Holiday gift list (sorry, no pom poms)”
Start Seeing CVI 