That feeling you get when taking your child with cortical visual impairment (CVI) to any place new and unfamiliar and leaving him and feeling like you have dropped him into the CVI abyss. Continue reading “CVI Abyss”
You may have seen this photo in a recent Start Seeing CVI Facebook post. My son with cortical visual impairment (CVI) went for an assessment to establish new occupational therapy (OT) services. As usual, the assessment or going anywhere or doing anything with my son, proved revealing in terms of his CVI. Continue reading “Seeing CVI at OT”
What to wear to go running at the track with my son who has cortical visual impairment (CVI)? With school out, the track would be empty so I am less thoughtful about the question of what to wear. Grey shorts and a grey tank top, my favorite top for keeping cool on a warm, humid day. We were good to go. Continue reading ““Where ARE you?””
The last day of school, at last. The last day of a long year, a transition year. New school, new teachers, new students, new environment, new team mostly new to the disability of cortical visual impairment (CVI). The last weeks were about pushing through, the final sprint. New assessments and therapy appointments were put on hold. Sensory outings and activities with animals and swimming were instead written in. Today is the last Friday of second grade. Today is the last art class. Today is the last pizza day. The countdown began. Continue reading “Last day of school”
“Hi, how long is open swim today?”
“Until three… pool’s empty right now.”
“EMPTY??” We’ll be right. There.
It was Memorial Day and it made sense that most people were out of town or out at the beach or out at a barbecue instead of at the local Y. The prospect of having an entire, not quite Olympic sized pool all to ourselves, me and my son who has cortical visual impairment (CVI), was almost too good to be true. Continue reading “CVI early bird”