Walking with my son this morning, we pick up an autumn leaf to look at together. He holds the leaf in his small hands. Continue reading “‘What colors do you see?’”
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Have you ever wondered ‘Why We Miss Objects That Are Right in Front of Us’? Insightful New York Times article on how expectations affect our visual perception. It is hard not to think of the implications for a child who has cortical visual impairment. The simulation is almost like a CVI Complexity Sequence card for those who do not live with CVI. And it brings to mind the words of Christine Roman-Lantzy: “For a child with CVI, seeing is easier when they know what to look for.” Continue reading “‘Why We Miss Objects That Are Right in Front of Us’ NYT article”
glassybaby is a nonprofit here in Seattle that creates handcrafted blown glass votives. Ten percent of every glassybaby is donated to the white light fund to help people, animals, and the planet heal. Last June, I nominated the Pediatric Cortical Visual Impairment Society for a glassybaby babygrant, and PCVI was awarded $6,000. If you are a parent, or work with a child who has cortical visual impairment (CVI) you know there is a critical need for awareness, education, and knowledgeable, qualified providers, from diagnosis all the way through the school years. PCVI Society is the only organization devoted solely to children who have CVI. Continue reading “glassybaby and PCVI Society”
Waiting outside the classroom door for our kids to be dismissed, another mom smiled to me and said, “Let me know if there is anything Ben can do to help Jasper.” This mom was not yet familiar, and all at once a stunned gratitude welled up inside me. This other mom obviously had some awareness of Jasper’s cortical visual impairment (CVI). Continue reading “How your child can help my child who has CVI”
Being inside a school classroom all day and sitting still and listening and paying attention and following directions and transitions and remembering to keep your hands to yourself and to be a friend and be kind is challenging for any six year old child. But being in a general education setting all day long and remembering to do all of the above and follow along is different for a child who has cortical visual impairment (CVI), who does not have the same visual access as his peers. Figuring out behavior is a challenge made excessively more difficult when the educational team does not know enough about CVI. Continue reading “‘Drink before you’re thirsty’”
Start Seeing CVI 