On the Start Seeing CVI Facebook page you can find many graphics. But this one is too good and too important not to share via this blog. The quote comes from Rachel Bennett, a CVI mom. You may have seen Rachel’s blog posts on Paths to Literacy. She perfectly captures the reality for parents of children with cortical visual impairment (CVI).
“We are here doing this work not by choice, but by necessity. We are here because the system is failing our kids with CVI. This isn’t my calling, this is me fighting for my kid’s right to access, to education, to appropriate medical care, to social inclusion. Parents of children with CVI are using their talents and skills to teach others and advocate in order to change the system. But know that all of this work comes from a place of grief, love, pain, and undying hope.”