Children with CVI and seizures

Too many of our children with cortical visual impairment (CVI) are also dealing with seizures. When CVI is associated with such conditions* as perinatal hypoxic-ischemic encephalopathy (HIE), perinatal stroke, infections of the central nervous system, or traumatic brain injury, so too there is often a history or risk of seizure. Like CVI, seizures look different from one child to the next. Some children experience seizures at birth, or have infrequent seizures, while others suffer from seizures that are nearly continuous and impossible to control. As the parent of a child who experienced stroke, I have done enough research and asked enough questions to know that the risk does not go away. Again, like CVI, it does not resolve (Roman).

No matter how long it has been, when you have witnessed your child’s seizure, the experience does not leave you. After a time it fades to the back of your mind again, and waits. Next time it happens, everything else falls away. It reminds you that you are not in charge. One of the hardest things for a parent, is sending your child back to school following seizure.

This blog was quiet last week because of seizure, everything fell away. With seizures, two years can be a sort of milestone. It can mean that they are less likely to recur, or it can mean the beginning of tapering off anticonvulsant medications. Early January would have been two years since Jasper’s last seizure. That is a difficult statistic to swallow. So I am revisiting a post called Please hurry, written… nearly two years ago, about the experience of your child’s seizure. Click the link for the original post.


*According to the American Foundation for the Blind’s Statement on Cortical Visual Impairment.

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