
It was in the home stretch of a long summer road trip with my son who has cortical visual impairment (CVI), when a CVI like experience emerged on the road before us. Continue reading “Seeing CVI while driving”
Increasing awareness of cortical visual impairment (CVI), the leading cause of visual impairment in children

It was in the home stretch of a long summer road trip with my son who has cortical visual impairment (CVI), when a CVI like experience emerged on the road before us. Continue reading “Seeing CVI while driving”

One of the most common questions from parents of children with cortical visual impairment (CVI) is, how do I approach literacy? Below is a link to a post from a CVI mom on how the “whole word” approach to literacy, developed by Christine Roman-Lantzy, and how to create “bubble words” in the YouDoodle app. Continue reading ““CVI Adaptations: Bubble Words in the YouDoodle App””

“Mommy, I can’t wear my glasses trick or treating because my mask goes over my face.” Until then it had not occurred to me that his head to toe Batman costume meant that friends would not likely recognize him at the first trick or treat in our new town. Stricter school security meant no access to classrooms, no access to kids, parents, families at his new school. The hope was that Halloween would mean bumping into some new school friends, meeting other families. Having a child with cortical visual impairment (CVI) who cannot recognize faces, makes it extra hard to recognize friends on Halloween. Continue reading “Trick or treating with CVI”

On the brink of November, for a child with cortical visual impairment (CVI), it is still the beginning of the school year. Each school year is different for all kids, but for kids with CVI, each year may as well be a whole new school (especially when it really is a new school, new school district, new neighborhood, new city, new state, a whole new world). The CVI characteristic of novelty (Roman-Lantzy) has an impact on our kids and “new” lasts longer. Newness lingers for them, much longer than it ever would for us. Continue reading “CVI modifications, it’s the little things.”

We know that one of the ten characteristics of cortical visual impairment (CVI) is difficulty with faces, a component of Complexity (Roman-Lantzy). Knowing this, we should take some time to consider how we greet and interact with a child with CVI, remembering he is not likely to recognize you. This is essential for school teams, especially at the beginning of the school year. With a swirl of new peers, teachers, and classes, how we greet kids with CVI is so important. Continue reading “How do you greet a child with CVI?”