CVI early bird

EF8A311F-C4DB-4762-9326-9B9F79BA7807“Hi, how long is open swim today?”

“Until three… pool’s empty right now.”

“EMPTY??” We’ll be right. There.

It was Memorial Day and it made sense that most people were out of town or out at the beach or out at a barbecue instead of at the local Y.  The prospect of having an entire, not quite Olympic sized pool all to ourselves, me and my son who has cortical visual impairment (CVI), was almost too good to be true. Continue reading “CVI early bird”

Back to school in April

09189E40-F539-48C2-B66E-874786D3C200“Wait – what??” you might be thinking. It’s only April. It’s only just now turning to spring. The return of warmer weather. Trees and  flowers blooming, longer and brighter days ahead. School is still in session. Maybe you haven’t even had your IEP meeting for your child with cortical visual impairment (CVI). Or maybe you are still struggling through this school year, let alone ready to get ready for the next one. Or maybe every morning you wake up to, “Do I have to go to school?” “Can I stay home, just today??” (A thousand times, no.) It might still be April, but it is not too early to start thinking about back to school. Continue reading “Back to school in April”

It’s not you, CVI, it’s me.

Listening to music
Listening to music

As my son’s OT session wrapped up, the therapist began talking to him, summarizing what they worked on, reminding him of his homework. “Next week, you’re going to make a ham sandwich with mayonnaise…” As soon as she started talking, my son turned and looked away, down toward the floor. Noticing this, the therapist stopped mid sentence and called his name. In her mind, his looking away meant, He’s not paying attention, he’s not interested, he’s not listening to me. It was easy to see how she had misinterpreted his turning away as a loss of attention and interest. For my son who has cortical visual impairment (CVI), this kind of thing happens on a daily basis. Continue reading “It’s not you, CVI, it’s me.”