CVI in the hallways

CVI in the hallways
CVI in the hallways

Back to school for students with cortical visual impairment (CVI) means right back to navigating what can seem like brutal school hallways, sometimes even when they are devoid of students. Already this school year is a reminder of the difficulty of navigating hallways for a student in Phase III CVI.

Probably most of us grown ups do not give much thought or attention to walking down a bustling school hallway. But what kind of shape would a student with CVI be in by the time they arrive at class? Whether the student makes his way there on his own or with assistance? In an effort to foster his independence, this year my son has been navigating within the school, more and more, on his own. This involves moving between classes on a single floor, as well as making his way between floors using the stairwells.

One day this week following resource room he was about to head out into the hallway to go his next class. This was between class periods so hallways were filled with plenty of other children, movement, chatter, sound. This newfound independence has been highly motivating for him and each day, he is excited to make his way. But instead of heading out, he shut the door and told his teacher – “It’s too loud, I need to wait.” Because using his vision to navigate a busy, noisy school hallway is hard for a student with CVI. Looking plus hearing is hard, and to that add visual field deficits (hemianopia), complexity, clutter, movement, faces, color, distance, sensory complexity (Roman). In such an environment, the characteristics work against the best intentions of the student with CVI. And this is one single experience within the entire school day.

Jasper’s teacher was supportive and he hung back until the hallway was more calm, then headed out to make his way back to his classroom. It is so important for grown ups and teachers to be aware and understand just how difficult this is for students with CVI, no matter their other abilities. It helped that he was able to verbalize this – self advocacy is an IEP goal and a skill that is only just emerging. Imagine what the impact of that hallway might look like for a nonverbal student? Had Jasper not advocated for himself and entered the crowded hallway, the experience might have ended in “behavior,” sensory overload, CVI meltdown. The ability to advocate for himself this way will be a huge benefit for him.

When arriving at school each morning, our goal is to get there on the late side of “on time.” That means only a few minutes before the start bell. By this time, most students have already arrived, passed through the halls and found their way to class. At the school entrance there are some remaining teachers, and only a few students trickle down the hallways.

This has been our habit for a while and it very much depends on our being timely. One day last year, we accidentally arrived too early. Being late for anything is a constant worry for my son. But on this day, being early was not good either. After walking in among a throng of excited elementary students, he said to me, “Mommy, there’s too many kids at this school!” I knew what this meant for him. We walked in, turned, and found a quiet spot along the hallway.

For us, arriving on the late side helps. It matters because his experience in the busy hallways, at the start of the day or throughout, might otherwise set the tone for the rest of his school day.

 

2 thoughts on “CVI in the hallways

  1. Dear Brenda. Have you guys moved? I love this story of J’s advocacy and the story you have here about staff respect of that advocacy. I use Nicola’s examples all the time. We really need to listen to the voices of people living with CVI.

    Liked by 1 person

    1. Yes, we did.
      And yes, such a good example here, so proud of him. These last few years, he’s really communicated the impact that noise has on him.

      Like

Leave a Reply to mazels2014 Cancel reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s