Category: Phase III CVI

cortical visual impairment, CVI, CVI and faces, facial recognition, How your child can help my child who has CVI, Phase III CVI, school, social skills

How your child can help my child who has CVI

How your child can help my child who has CVI
How your child can help my child who has CVI

Waiting outside the classroom door for our kids to be dismissed, another mom smiled to me and said, “Let me know if there is anything Ben can do to help Jasper.” This mom was not yet familiar, and all at once a stunned gratitude welled up inside me. This other mom obviously had some awareness of Jasper’s cortical visual impairment (CVI). Continue reading “How your child can help my child who has CVI” →

'Drink before you're thirsty', CVI, education, Phase III CVI, visual break, visual fatigue

‘Drink before you’re thirsty’

'Drink before you're thirsty'
‘Drink before you’re thirsty’

Being inside a school classroom all day and sitting still and listening and paying attention and following directions and transitions and remembering to keep your hands to yourself and to be a friend and be kind is challenging for any six year old child. But being in a general education setting all day long and remembering to do all of the above and follow along is different for a child who has cortical visual impairment (CVI), who does not have the same visual access as his peers. Figuring out behavior is a challenge made excessively more difficult when the educational team does not know enough about CVI. Continue reading “‘Drink before you’re thirsty’” →

cortical visual impairment, CVI, ophthalmologist, Phase III CVI, salient features, Words can be more stable than pictures

“Words can be more stable than pictures”

"Words can be more stable than pictures" "For children with CVI, words can be more stable than pictures." This was another piece of CVI wisdom from Christine Roman-Lantzy that this CVI mom had heard repeatedly, it seemed, these last few months. But it was at our ophthalmology appointment that it played out right before my eyes. To say that cortical visual impairment is a complex diagnosis is an understatement. Along with CVI, we have amblyopia, astigmatism, hemianopsia, myopia, nystagmus, strabismus, and most recently, anisometropia. While some of these can be considered ocular impairments, they are also intrinsically tied to CVI, or at least to the brain injury and damage that resulted in my son's cortical visual impairment. Anisometropia, by its simplest definition, is a difference in acuity between the two eyes. When it comes to my son's vision, even acuity is imperfect. The problem became apparent when Jasper started covering his left eye whenever he looked at...anything. The parent-teacher solution was to tell him to stop doing this - but our kids' behavior has meaning and purpose. So instead of covering that left eye, Jasper began shutting it whenever he looked at...anything. Because the left eye is weaker - the stroke that damaged his occipital lobes was greater on the right than the left - he had come to rely on the right eye, creating an imbalance in his acuity. Use it or lose it. Ever since the diagnosis of anisometropia two years ago, we follow up with the ophthalmologist every four months. Well aware of the complexity of my son's vision, that acuity test hits hard every time. Lea Symbols are commonly used to test the distance acuity of children beginning at age 2 1/2. The four symbols are a circle, apple, square, house. For a child with CVI, it seems fair to review the symbol shapes prior to the test. Circle, square...is that another square? No, it is similar to square on the bottom but is pointy on top, with edges that point down, like the roof of a house, it must be a house. And is that another circle? It is circular but curves in at the top and bottom, similar to an apple, how it curves at the top where the stem is, that must be an apple. But this is not what happens and my son, who loves going to the ophthalmologist, struggles in the exam chair from 25 feet away to distinguish the salient features of the house and the apple. Each time, the same thing. He might get one or two correct. Except last time. Jasper is now six years old, beginning first grade. The doctor's assistant asks, Does he know the alphabet? Yes - yes!! And instead of Lea symbols, letters appear on the screen across the dimly lit room. Holding my breath, Jasper reads off the letters. Still imperfect, but this time he is able to identify almost all of the letters. Instead of only one or two correct, he misses two or three. It is amazing and by far the best he has ever performed on a distance acuity test. "For children with CVI, words can be more stable than pictures." Stunned, the words came to me almost immediately afterward, and I jot them down just as the doctor arrives to finish the exam. Comparing Jasper's struggle with abstract pictures versus plain old letters, forces a kind of acceptance. As the parent of a child who has CVI, you see that struggle every day. Reading those letters feels less like a struggle and more like an accomplishment and we will take that and run with it.
“Words can be more stable than pictures”

“For children with CVI, words can be more stable than pictures.” These were the words of Christine Roman-Lantzy that this CVI mom had heard repeatedly, it seemed, this past year. But it was at our ophthalmology appointment that the words played out right before my eyes. Continue reading ““Words can be more stable than pictures”” →

comparative language, cortical visual impairment at home, CVI, Phase II CVI, Phase III CVI, salient features

Cortical visual impairment at home

Cortical visual impairment at homeFor parents of children with special needs, including and especially CVI parents, summer affords a much needed respite from contending with schools and IEP teams. While we do not need to focus on those essential classroom adaptations and accommodations that are necessary at school, we can focus on ways to use vision during the day, every day, around the house in a natural environment. Continue reading “Cortical visual impairment at home” →