advocacy – Start Seeing CVI

advocacy, cortical visual impairment, CVI, cvi awareness, CVI ten characteristics, education, Let's change the way we talk about kids with CVI, parents

Let’s change the way we talk about kids with CVI

“He’s just so…UNIQUE.”

“I’m not sure we would have the expertise needed to assess her.”

“He almost sounds like… a case study.”

“He sounds too complex to be evaluated.”

Some days our kids with cortical visual impairment (CVI) really put the special in the term “special needs.” Lately, in yet another quest to find a provider to conduct an appropriate assessment, it is back to this all too familiar language when it comes to talking about our children with CVI. Continue reading “Let’s change the way we talk about kids with CVI” →

advocacy, CVI range, parents, The AER Resolution, where'd it go?

The AER Resolution, where’d it go?

You may remember last July, when we discussed a certain resolution that targeted students with cortical visual impairment (CVI), and the CVI Range (Roman-Lantzy). The Resolution was presented at the International AERBVI Conference in Reno, Nevada. Resolution (AER-2018-00) was presented on site without prior notice, without warning, and hastily “passed” (absent members were denied the opportunity to vote). These are extreme tactics that are all too concerning in these political times. Continue reading “The AER Resolution, where’d it go?” →