“He’s just so…UNIQUE.”
“I’m not sure we would have the expertise needed to assess her.”
“He almost sounds like… a case study.”
“He sounds too complex to be evaluated.”
Some days our kids with cortical visual impairment (CVI) really put the special in the term “special needs.” Lately, in yet another quest to find a provider to conduct an appropriate assessment, it is back to this all too familiar language when it comes to talking about our children with CVI. Continue reading “Let’s change the way we talk about kids with CVI”
“Wait – what??” you might be thinking. It’s only April. It’s only just now turning to spring. The return of warmer weather. Trees and flowers blooming, longer and brighter days ahead. School is still in session. Maybe you haven’t even had your IEP meeting for your child with cortical visual impairment (CVI). Or maybe you are still struggling through this school year, let alone ready to get ready for the next one. Or maybe every morning you wake up to, “Do I have to go to school?” “Can I stay home, just today??” (A thousand times, no.) It might still be April, but it is not too early to start thinking about back to school. 
This April is our second annual CVI Literacy Awareness Month. When it comes to “visual impairment” most people think of two things: the eye, and braille. Cortical visual impairment (CVI) is different on both fronts. CVI is a brain based condition, not an eye condition. And most children and people with CVI are not braille learners. 
Start Seeing CVI has two updated kids’ t-shirts. These will be added to the 
Start Seeing CVI 