StartSeeingCVI

"Literacy begins when they look", cortical visual impairment, CVI literacy

“Literacy begins when they look”

preferred color, light, preferred visual field — preferred color yellow, light, preferred visual field

“Literacy begins when they look.” These were the words with which Christine Roman-Lantzy began her pre-conference session last fall at Northeast AER in Vermont. These words are important because parents of children who have cortical visual impairment (CVI) need to know that when we talk about literacy, we are not only talking about kids who are in Phase III CVI (Roman). When we talk about CVI literacy, we are talking about all kids who have cortical visual impairment. Continue reading ““Literacy begins when they look”” →

education, Literacy materials for Phase II and Phase III CVI, Phase II CVI, Phase III CVI

Literacy materials for Phase II and Phase III CVI

* Guest blog post by Judy Endicott

I am in awe of the families who belong to the community of cortical visual impairment (CVI) learners, of Christine Roman-Lantzy and all the others who have taught me about CVI. Everyone’s journey into the world of CVI has been different, but our common quest for knowledge has created a powerful force for change. Thank you all for your sharing your knowledge! Continue reading “Literacy materials for Phase II and Phase III CVI” →

CVI literacy, parents, Phase III CVI, What do you see? How do you know?

What do you see? How do you know?

When it comes to looking at books with my son who has cortical visual impairment (CVI), there is a specific approach. He is in Phase III CVI (Roman-Lantzy) and there are some books that we buy off the shelf, and look at unmodified. As always, when it comes to choosing books, the goal is to feed his interest in literacy by choosing subjects that will be meaningful and motivating. Recently we picked up This is How We Do It: One Day in the Lives of Seven Kids from Around the World, by Matt Lamothe. My son is incredibly social and highly interested in people and other kids, my suspicion was that he would like the book. Since buying it several weeks ago, Jasper has read it every night at bedtime. When he reads the book to me in the dim evening light, I can tell that he has the book memorized. Continue reading “What do you see? How do you know?” →

“We are going to change how our children with CVI see the world", CVI, CVI Symposium, parents

“We are going to change how our children with CVI see the world”

The fourth annual CVI Symposium was inspiring and hopeful from the outset, with the remarks of Ed Bosso, Perkins’ president: “Not only are we going to change the world, we are going to change how our children with CVI see the world.” I cannot help but add – we are going to make sure the world starts seeing our kids with cortical visual impairment (CVI), the leading cause of visual impairment in children in the US. The auditorium was filled with parents, providers, researchers and included Lotfi Merabet, Christine Roman-Lantzy, and Ellen Mazel. Continue reading ““We are going to change how our children with CVI see the world”” →

“Intervention must be driven by intention, not by materials", CVI, CVI literacy, education, Phase III CVI

“Intervention must be driven by intention, not by materials”

* Guest blog post by Judy Endicott

“Intervention must be driven by intention, not by materials.” – Christine Roman, 2018

Think about your own adult reading behaviors. Think about the range of choices of materials you have to choose from. Sometimes you pick materials based on length, sometimes on size of text, amount of pictures, subject and a range of other factors. You pick and choose, driven by goals and tempered by your energy and motivation. Continue reading ““Intervention must be driven by intention, not by materials”” →