At a neurodevelopmental appointment with my son I am reminded of the amazing people in our lives.
When retelling anything, my tendency is toward too much detail, context, too much information. Along with facts of his birth and a medical history too long for such a young child, it was hard not to mention certain people to our most recent new provider, neurodevelopmental. Listening to our story, she reassured, she was empathetic, compassionate. You had a hard time at the beginning, she began, words that bring tears to my eyes when said out loud. But you have these magical people who have fallen into your life to help. We do not have family here, instead we have Magical People.
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With the return to in person school following a year of remote learning, the birthday party invitation came early. The real and true measure of any and all social skills goals in the IEP should be, “By June, having received all appropriate supports in place all year long, the student with CVI will be invited to X number of birthday parties.” Believe me, there is nothing so gut wrenching as attempting to explain to your child why he was not invited to the party. Here we are in November, at the first birthday party invite, for my son with CVI. 
Along the way of raising a child with a disability, there are moments when life seems to somehow come full circle. That’s what happened one day while reading a favorite book to my son with CVI. 
“Everything is cancelled.”
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